Most of you are aware that my mother lives with us.We both love her to pieces, but she can be a handful. I will not deny when she makes biscuits, we both indulge. Mom has been wonderful helping around the house. There are certain things I love her assistance with and others I prefer to do myself. I want to be able to keep moving. When I slow down, I may not be able to speed up. I can barely keep up with Barry now.
Mom and I just hang back and watch Barry go and go and go……He has turned into the Energizer Bald Bunny with reading glasses. He is so cute.
We made a trip to Emory for a follow-up mammogram. Scheduled my thyroid scan for the first week in August. I will be radioactive for a bit, but hopefully they will get this taken care of and I can get a little rest. Barry and I both deserve it. Two other appointments on Monday.
To top our week off, I have pneumonia again. I have got to work on immune system. I can’t seem to shake feeling weak.
In August 2013, my sweet husband passed out cold in our living room. In the process of falling, he struck his head on our front door and appeared to be having a seizure. Later we discovered the seizure-like activity was due to hitting his head. He had a concussion. The Cat scan showed he had swelling in the right lobe of the cerebrum. While I made sure he was safe, I got mom to call 911. The ambulance arrived and swept my sweetheart of to the hospital. We spent the next five months in and out of the hospital. Six months later, he is home, healthy and running circles around me. God is good! Numerous doctors tried to tell me that Barry would not survive. They did not know my hubby. Barry and I are strong-willed people and we do not give up easily. I was not about to let him give up! Once we settled into a routine, I started to notice subtle differences in my sweety. At first, it put it off to what he had been. I then realized his body was full of medications floating around his body. He needed to flush his body with healthy food and fluids. His thought processes were slower. He lost his inhibitions. For the first few weeks, it was like I had married a seventeen year old boy trying to discover the world in 24 hours. It was hard to keep up with him. He is closer to normal now. When I had a chance to speak with his cardiologist, he educated me on “pumphead”. The link below will go into more detail. I will miss the comical antics, but thrilled I am to have my Barry back. We spend our time in the kitchen discovering low-sodium dishes to keep us healthy. Mom lives with us. She needs the low – sodium dishes more than we do. http://www.heartdisease.about.com/cs/bypasssurgery/a/pumphead.htm
Jill was with me when I saw my Cardiologist “Dr. B” a couple of weeks ago, and he said the echo looked good and in his words “you are cured”, I praise God for that comment. As God is the only reason I am alive today. He also said that doctors get what they call a “save” maybe once every seven to ten years, he considers me as one of those statistics. Well I was so tickled that all the surgical repairs have held up, “Dr.B” also mentioned that there was a time that the Doctors did not know what to do.
I have difficulty with “the ease” cardiologist have when diagnosing heart conditions. The echocardiogram is done two different ways in today’s medical facilities.
Of course, they know what they are looking for and how to find it. The actual sonogram of the heart is quite simple. As a woman, I am terrified of the sonogram. The device has made a strange turn for women; you can compare the new procedure to the latest form of echocardiogram. As a patient, the versatility of the device amazes me. I am tickled pink there is a non-invasive procedure available to heart and other patients in need.
Barry had his second echo this am. He feels really good about the test. Now the wait is on for a call from the good Dr. C. He will be the man calling to pass the good news on to my Bear. We will not accept anything but good news. I feel good about the test as well. I have prayed daily that the good Lord is watching over us and that things will work. We both have faith. Thank you!
Photo taken Friday, December 27, 2013 at my sister’s house! Aren’t we lovely?
1/17- Jill’s genetic disorder confirmed
1/18- Jill referred to high risk breast center at Emory; 4th follow-up mammogram cleared from 2012
2/18-Pop in hospital after defibrillator went off at shop
2/20- lump discovered
2/21- mammogram, ultrasound, biopsy completed.MRI Scheduled.
2/28-core biopsy done, Pop home from Hospital
3/3- Barry retired to be home with me and due to stroke
3/4- DCIS diagnosis (breast cancer) received and surgery scheduled.
3/8-Pop back to hospital
3/15- surgery scheduled
3/30-surgery, lump removed and margins cleaned
4/3- 9th wedding anniversary
4/15-2nd surgery, margins needed to be cleared
4/19- Pop back to hospital
4/20- spoke with hospice concerning Pop
4/30-3rd surgery, margins still not clear; Pop home from hospital
5/6-appointment with Medical Oncologist to discuss options. Lab work to determine type of chemotherapy/radiation needed.
6/6- Port inserted for chemo, another surgery
6/7- Chemo started
7/10- Barry stroke doctor
7/24-meeting with Hospice, Pop admitted to Hospice.
8/7-Barry passed out at home, to Eastside Mefical by Ambulance; admitted
8/8- overnight transferred to ICU and then transferred to Saint Joseph’s Hospital
8/9- last chemo
8/14- received phone call, 3 hours before Barry’s surgery, that my Father had passed away from Congestive Heart Failure. Valve replacement surgery and abscess clean-up
9/9-admitted to Saint Joseph’s Hospital
10/10-started radiation (M-F for 33 treatments)
10/14-admitted to Saint Joseph’s Hospital
10/25-radiation, discharged home
11/13-radiation, Barry admitted to Gwinnett Medical Center; after 3 days discharged. Got sick on the way home, taken to Northside Hospital ER. Transferred to St. Joseph’s Hospital for admission (Jill’s birthday)
11/22-radition, discharged from hospital. Sent home for holiday to prepare for surgery before Christmas
12/5-last radiation treatment completed prior to Barry’s admission. Admitted to Saint Joseph’s Hospital in preparation for surgery on 12/9.
12/17-discharged home from the hospital after surgery.
12/19-Home Health following IV infusions to treat endocarditis
- A Silent Battle (rachelannaglass.wordpress.com)
- Start of Chemotherapy and Radiation (butiatesomuchkale.wordpress.com)
- 5 things to know about the new Southeast Radiation Oncology Center (ktoo.org)
- UNC Researchers Develop Compact Delivery System for Microbeam Radiation Therapy Using Nanotechnology (thealmagest.com)
- A Christmas Wish for Emma… (claycountyweb.wordpress.com)
- Breast surgeons report improved visualization of treatment area for radiation therapy (medicalnewstoday.com)
- California girl undergoing chemo reunited with missing dog (fox2now.com)
This admission was one pain in the rear after another! I’m not going to waste my time discussing the service and miscommunications that went on. The only thing that matters is we are home, nice and comfy getting into a routine of follow-ups. But I am starting to believe there will be no peace after this operation.
The home health agency is starting up now. But they are not going to stress me out either. I have had it with medical staff. So I am going to take care of Barry, better than he took care of me. He deserves the best!
Thank the dear Lord above, Barry is alive and healthy. The fluid was a bit slow to start coming off, but he has started dropping fluid like a leaky bucket at a watering hole. You know how kids grow so fast you can’t keep them in clothes, well….my Barry is doing the opposite. He is shrinking. I thought a large sweatpant would work, they look like ssomeone moved out of the rear of his sweats.
He at least has some color and is feeling better. The hospital issues are behind us. That is where they need to stay. Barry, Mom, Maggie and I are comfy and safe at home
This is turning into the hardest thing I have ever had to do. My sweet hubby is the strongest person I know on this earth and watching him grow weaker and weaker is killing me. My heart breaks a little more everyday.
I go through the scenarios about this illness and they do not help. Yes he can improve. I am well awarebof that! I just do not enjoy watching him feel so bad.
He is so weak, he can’t walk to the bathroom without getting short of breath. His legs and abdomen are so swollen you can hardly recognize him. He says he doesn’t hurt, but is just uncomfortable.
I have no doubt he is saved and going to heaven. That is not what my tears are for. My tears come from watching what this disease is doing to his body. I know the Good Lord has a plan and is watching over my sweeatheart. He is by my side as I take care of Barry.
If this procedure is what Bear needs to make him better, I pray that his kidney levels have improved and they can schefule it as soon as possible. If not, please give Bear the strength to accept the fact that they have to go into his chest s third time. He is scared and I cannot bkame him. The doctors have repeatedly told him all about the risk. It scares him to hear about it. It scares me too.
I feel like Barry is taking me through a trip down memory lane. We spent the weekend in his hometown. We took a million pictures of special places where he spent his childhood. Is he trying to tell me something?
In our earlier post, we stated we’d try to get a post in a week. Maybe more. According to how our day goes! Between radiation treatments, Barry’s doctors appointments and our energy levels; we are lucky to get anything posted. Have patience. I have taken pictures and written posts while sitting around the hospital. A lot of interesting things go on in local hospitals! Just wait……
●get Barry home and comfy
●organize and get all medications (mine, Barry’s ans mom’s), make sure they take them
●coordinate with visiting nurses for home IV antiobiotics
●Coordinate my appointments, with Barry’s and momma’s
●arrange assistance with appointments
●get hospital bed for Barry
●Take Barry’s vital signs three times daily
●Keep dressing on pic line intact
●Take care of dog and cat
●make sure Barry tries to eat
●AM Care for hubby
●PM Care for Barry
●Dressing assistance when needed
●make sure he gets enough rest
●cook breaskfast, lunch snd supper
● do laundry when mom can help
I just wanted to see a list. Might I add that the calendar had no free days available by the first Saturday in September. Our new Jeep is getting quite a workout. It actually runs better since the repairs were made after I filled our new diesel with unleaded. What a Bonehead move to make.Have a great day everyone!