Tag Archives: Health

Echocardiogram Update

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echogram

 

Jill was with me when I saw my Cardiologist “Dr. B” a couple of weeks ago, and he said the echo looked good and in his words “you are cured”, I praise God for that comment.  As God is the only reason I am alive today.  He also said that doctors get what they call a “save” maybe once every seven to ten years,  he considers me as one of those statistics. Well I was so tickled that all the surgical repairs have held up,  “Dr.B” also mentioned that there was a time that the Doctors did not know what to do.

 

 

We are back, at least for the moment!

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In our earlier post, we stated we’d try to get a post in a week. Maybe more. According to how our day goes! Between radiation treatments, Barry’s doctors appointments and our energy levels; we are lucky to get anything posted. Have patience. I have taken pictures and written posts while sitting around the hospital. A lot of interesting things go on in local hospitals! Just wait……

I’m going on a blogation

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For those faithful followers, please don’t give up on me. My life needs my full attention for the time being. Barry is recovering well,  physically and mentally,  but his recovery is my number one priority at the moment. I will do my best to keep at least one post a week going. Have a great fall. Hope to be writing faithfully again soon!

Please keep us in your thoughts and prayers! God bless you all! Please email me anytime at

tworightsattemptingtomakealeft@gmail.com.

I love email.

Thanks! Jill B.

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I want to write, but I am at a loss of words!

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God doesn’t give you things you can’t handle, the things He gives you make you stronger. I can handle a lot, but just not sure how much more I can take.

When does your cracking point kick in? Do we have a cracking point or are we made to take and take and take…more more…How do you judge when enough is enough?

Is it that when God sees you  overwhelmed, he releases the more more and gives you a break?  I am not going to lie, I could use a huge break, but I am not sure my sweet husband can handle a break. At least over the next few weeks. We have to get the house ready for him to come home.

For the next six weeks, he will be on IV antibiotics and then oral antibiotics the rest of his life. A physical therapist will work on his strength at home, but I am still terrified. His lungs are filling up with fluid again, even sleeping with a bi-pap machine on. He is off oxygen all together, but I’m scared.I want to be able to care for him properly at home.

I was the one that couldn’t tell he was sick. He started showing signs of not feeling well, but refused to admit something was wrong and would not go to the doctor. I feel guilty that I didn’t push, now his cardiologist can’t give me a good answer about how much time he has. I can tell he is stressing over it, but he won’t talk to me. I have him scheduled with his psychiatrist at the first of the month. Surely home will be our new location by then.

I ask that everyone help me pray for grace, strength and mercy. Maybe with enough Faith added to the list, Barry and I will survive. Forgive my ramblings today, I am still am emotional disaster.

That dreadful place called the hospital, It was so hard to leave him there

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Sitting here, in no way can this place  be called fun. I am beginning to understand why people do not like hospitals. Yes, they are places where the sick or injured come to be healed. Hospitals are meant to be full of joy at the birth of a child,  or extremely sad watching a loved one in pain.

Painful things happen in hospitals. A lot of people do not how what or how their bodies work making things painful and scary. Some people experience trauma or have bad memories or cannot handle the emotions that hospitals bring out in you. Others just do not like pain.

The one I am sitting with loves being at home, in his recliner, his wife in her chair next to him and the dog sitting at his feet. Water glass next to him on the table, watching a crazy comedy on the television. He has his cute little quirky sense of humor. I never know what to expect out of his mouth. He even talks for the dog! It is so funny! She just turns her head side to side looking at him like he is nuts.

 

They want me to place him in a long-term care hospital. I do not feel that is where he needs to be, but I’m not a doctor. In my opinion, that will only make him worse. He needs some rehab. I can see a rehab center.

In the two days I have been with him, he has perked up.  Getting in and out of bed on his own (even when the staff did not want him too) He’s getting adventurous, I just hope he does not hurt himself. I love him so much it hurts. The thought of being without Barry, well, it kills me. We aren’t at the age that this kind of thing is expected. I just feel so very lost.

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Writing Through Cancer | For the Week of August 4, 2013: Can It Get Any Worse? Part 2

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Part 2

My strength comes from the Lord, my family, and my handsome husband Barry. I draw a bit of strength from each of these people. Together, day by day, problem after problem, we grow stronger as a group. The easiest way to deal with issues is one at a time, one day at a time.”Hope springs eternal”, from Alexander Pope, An Essay on Man. That quote says it all. Keep hope alive.

Barry and I are adapting well to dealing with our illnesses. We had to get re-acquainted with each, but everything has worked out. He had to retire.  The stroke left him unable to handle working full-time. Barry  made adjustments around to house to aid me in normal daily function. He helped Libor and Jonny build a porch and ramp off the front of dad’s home. Worked beautifully.

There is no course reversal for my illness. There is only management and learning to cope. You keep up with your yearly appointments, take your medications as prescribed, eat healthy, and exercise. Cowden’s Syndrome is a rare disorder about a mutated gene in my DNA. To learn more, follow the link. http://en.wikipedia.org/wiki/Cowden_syndrome is related toLDD: which is just a symptom of Cowden Syndrome. http://en.wikipedia.org/wiki/Lhermitte%E2%80%93Duclos_disease

No one looks forward to losing a loved one. I for one, can definitely say, I am not ready to lose my dad, Barry lost his father at a younger age, so he is helping me deal with the emotions, while I take care of my health. My sister’s are in the boat with me. We’d like to keep mom and dad around forever. But that is not in God‘s Plan. Only he knows when it is our time to be with him. So, One day at a time. Slow as we go, enjoy every minute we have.

 

The daily prompts I write from each week come from the following blog by Sharon Bray:

http://writingthroughcancer.com/

Follow the link to her blog. She is incredible! Thank you, Sharon…..Jill Baynes