Dreadful Doctors

My title is not fair to all doctor’s. I enjoy the physicians I am currently working with. The dread I am referring to is what they are going to tell me or ask me to do.  Since 2012, the neurologist I see thinks he needs to change the medications I am taking, just to see if something new will help.

What I have discovered and verbalize to them is “NOTHING HELPS”.  I feel like a lab rat at times. Actually had one physician say I should feel honored to be in his presence because is that good! Needless to say, I refuse to ever see him again.

I have enjoyed working with the rehab center and the cancer specialist. They try to cover every aspect of care a patient may need. They offer incredible services at Winship.

After everything, we have been through, it is wonderful to be treated special after certain diagnoses. The sad part is the numbers of people in and out of the doctors offices at Winship.

One of the things that I dread yearly, is my thyroid scan. It is such a long process and it takes all week just to get to the point where the scan can be done. For some reason, My Protein levels are staying elevated and thyroid cancer is playing hide and seek in my throat. The last PET Scan showed there is still something in my neck. Hopefully, this will be the last treatment for a few years. This is only the fifth time since 2009.

Personally, I am ready to run away from home. I put a smile on my face and keep going. I refuse to let this or anyone get me down. I need to take care of myself, Barry, Maggie and mom.  I am faithful the the Good Lord will be by my side through the next week. It has been a bad couple of weeks and it is time to turn things around. Have a joyful week everyone!

Pumphead

In August 2013, my sweet husband passed out cold in our living room. In the process of falling, he struck his head on our front door and appeared to be having a seizure. Later we discovered the seizure-like activity was due to hitting his head. He had a concussion. The Cat scan showed he had swelling in the right lobe of the cerebrum. While I made sure he was safe, I got mom to call 911. The ambulance arrived and swept my sweetheart of to the hospital. We spent the next five months in and out of the hospital. Six months later, he is home, healthy and running circles around me. God is good! Numerous doctors tried to tell me that Barry would not survive. They did not know my hubby. Barry and I are strong-willed people and we do not give up easily. I was not about to let him give up! Once we settled into a routine,  I started to notice subtle differences in my sweety. At first, it put it off to what he had been. I then realized his body was full of medications floating around his body. He needed to flush his body with healthy food and fluids. His thought processes were slower. He lost his inhibitions. For the first few weeks, it was like I had married a seventeen year old boy trying to discover the world in 24 hours. It was hard to keep up with him. He is closer to normal now. When I had a chance to speak with his cardiologist,  he educated me on “pumphead”. The link below will go into more detail. I will miss the comical antics, but thrilled I am to have my Barry back. We spend our time in the kitchen discovering low-sodium dishes to keep us healthy. Mom lives with us. She needs the low – sodium dishes more than we do. http://www.heartdisease.about.com/cs/bypasssurgery/a/pumphead.htm

A Short Walk Down Memory Lane….the memories you like to forget

The seventh grade threw me for a loop. New kids, new teachers, new courses and a Science that would add points to your grades if you were willing to eat chocolate covered crickets! I enjoyed his course, along with a few grasshoppers. Let’s just say I had Science aced without trying.

But many other things were going on around school that I never had opportunities to try in the my younger years. Mom suggested checking into a  few options, try out, then see how it goes. Well, let me tell you…….I picked cheerleading. What a mistake! I faithfully practiced, at school and home. I was ready and would make the squad. My plan did not match the plan Jesus had for me.

When my turn arrived. I nailed the routine. I worked a “split” into my routine. I started the end of my routine. Finished with the best split I had ever accomplished! I felt incredible, until I realized I could not get up! One of the judges helped get me on my feet. Needless to say, I did not make the squad!

Ra Ra Re, Kick them in the knee……..Ra Ra Re, Kick them in the other knee!

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Echocardiogram Update

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Jill was with me when I saw my Cardiologist “Dr. B” a couple of weeks ago, and he said the echo looked good and in his words “you are cured”, I praise God for that comment.  As God is the only reason I am alive today.  He also said that doctors get what they call a “save” maybe once every seven to ten years,  he considers me as one of those statistics. Well I was so tickled that all the surgical repairs have held up,  “Dr.B” also mentioned that there was a time that the Doctors did not know what to do.

 

 

“Worshipping the Lord in Song” (if you can call what I do singing) by Jill Baynes

Some may call me silly, but I choose not to care. I cry at Chipmunk Movies, now that is silly. I cry when a sweet commercial is on television. I’m silly….take me as I am and deal with it!

In 2009, my life changed forverer. I understand I am a child of God and my body is part of God’s plan. I had to learn that God’s plan is different for all and we are unaware of what our plan entails. The changes I endured, due to brain surgery, are all part of that plan. The Good Lord gave knowledge to the doctors to keep me alive; in my book, that means the Man Upstairs is not finished with me yet.

A dear friend spent 6 years attempting to get Barry and I to visit her church. She never gave up, she was never pushy; always encouraging. We put her off due to our business.

God had to really shake our lives up to get us in the front door. I had been through the brain tumor issue, when Barry shocked us all with a stroke; one year after aortic valve replacement surgery. By the grace of God he survived with minimal difficulties.

It took Barry’s stroke to open our eyes. We chose to close the business and focus on us. Barry continued to work, but eventually retired. Work did not do good things to his blood pressure.

We have been active members at Victory Baptist in Loganville for close to 2 years now. Today, I decided it was time to take a new step at church and joined the choir. After the brain tumor surgery, I would try to sing and found I was unable to get a word out.

Several months ago, l realized my singing was improving. As I sang with the congregation, my voice had come back and was growing stronger! I waited a few months and spoke to the choir director. He said when I was ready, just to let him know.

Well, this morning, the choir made me feel loved and welcome, as we waited to rehearse before the morning services. It felt incredible to be part of the group that makes such beautiful music each week. Of course, half-way through the first song, I saw Barry smile up at me and I cried…….

True Love and Commitment

Is true love, commitment, and faith a thing of the past?  Does anyone today know the meaning of these simple words? I’m not sure they do! There are many definitions available for the words listed above. It is up to you to decide which one best suits your needs. Of course, my opinion is what it is, mine3.

I guess it could be in God’s plan that certain people remain alone;

but I am a true believer! You have to want someone to find them and be friendly with the words compromise, faith and trust! For a very long time, I ran when22 those words came into a conversation. After my first husband, words like those, brought the scaredy cat out in me.

 

As I sit at my husband’s bedside; not knowing what the next minute will bring; I feel sad for so many people. Today’s generation of kids, will never know or understand the feeling of loving someone so much you are willing to sit by their bedside hour after hour, just to be near them.  To know they are safe for the moment and realize your smile will be the first thing they see when they open their eyes. The smile that graces their lips, at that moment, makes it all worthwhile.

Every time I help him stand or gain his balance, brings us closer together. In 2009, Barry was there for me. Telling me the same things about recovery and helping with anything and everything I needed. Sitting at my bedside, unsure of the future. He could have walked away and he did not. He stuck by my side because he loves me. Experiences we have shared, have only brought us closer together.

This definitely was not part of our retirement plan, but we are making the most out of what time God has blessed us with. Presently, we maybe be part couch potato, but we have plans.

Accommodation is a big part of our plans. The health issues we are dealing with, require us to make changes to our original plans. Just by chance, my handsome hubby is handling change better. A trip to a beautiful, sandy beach needs to be researched for handicapped accessibility. As we make travel plans, we learn something new with every call.

Are There Really Soul-Mates?

According to wikipedia, soul-mates exist.

http://en.wikipedia.org/wiki/Soul mate

Webster’s Dictionary also has a definition.

http://www.merriam-webster.com/dictionary/soul-mates

Since these two, well-known sources help define a soul mate, they must exist.

I’d call myself a romantic.

I’d like to believe there is, that perfect someone out there for everyone. There are times I would call myself a sucker; call me old-fashioned; call me old school; call me whatever you like; just be sure that you know I have faith in love and hate to see so many people unhappy or in a bad relationship.

Your person is out there. If I can find mine, after a disastrous first marriage, you can find yours! It took seven years, but Barry and I found each other. We have spent only two nights apart since

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Headed out for a birthday celebration!

getting married, We plan to renew our vows on our tenth wedding anniversary! It only takes an ounce of faith. God has a plan for you! Give it time!

 

Watching the strong get weaker one day at a time!

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This is turning into the hardest thing I have ever had to do. My sweet hubby is the strongest person I know on this earth and watching him grow weaker and weaker is killing me. My heart breaks a little more everyday.

I go through the scenarios about this illness and they do not help. Yes he can improve. I am well awarebof that! I just do not enjoy watching him feel so bad.

He is so weak, he can’t walk to the bathroom without getting short of breath. His legs and abdomen are so swollen you can hardly recognize him. He says he doesn’t hurt, but is just uncomfortable.

I have no doubt he is saved and going to heaven. That is not what my tears are for. My tears come from watching what this disease is doing to his body. I know the Good Lord has a plan and is watching over my sweeatheart. He is by my side as I take care of Barry.

If this procedure is what Bear needs to make him better, I pray that his kidney levels have improved and they can schefule it as soon as possible. If not, please give Bear the strength to accept the fact that they have to go into his chest s third time. He is scared and I cannot bkame him. The doctors have repeatedly told him all about the risk. It scares him to hear about it. It scares me too.

I feel like Barry is taking me through a trip down memory lane. We spent the weekend in his hometown. We took a million pictures of special places where he spent his childhood.  Is he trying to tell me something?

We are back, at least for the moment!

In our earlier post, we stated we’d try to get a post in a week. Maybe more. According to how our day goes! Between radiation treatments, Barry’s doctors appointments and our energy levels; we are lucky to get anything posted. Have patience. I have taken pictures and written posts while sitting around the hospital. A lot of interesting things go on in local hospitals! Just wait……