In August 2013, my sweet husband passed out cold in our living room. In the process of falling, he struck his head on our front door and appeared to be having a seizure. Later we discovered the seizure-like activity was due to hitting his head. He had a concussion. The Cat scan showed he had swelling in the right lobe of the cerebrum. While I made sure he was safe, I got mom to call 911. The ambulance arrived and swept my sweetheart of to the hospital. We spent the next five months in and out of the hospital. Six months later, he is home, healthy and running circles around me. God is good! Numerous doctors tried to tell me that Barry would not survive. They did not know my hubby. Barry and I are strong-willed people and we do not give up easily. I was not about to let him give up! Once we settled into a routine, I started to notice subtle differences in my sweety. At first, it put it off to what he had been. I then realized his body was full of medications floating around his body. He needed to flush his body with healthy food and fluids. His thought processes were slower. He lost his inhibitions. For the first few weeks, it was like I had married a seventeen year old boy trying to discover the world in 24 hours. It was hard to keep up with him. He is closer to normal now. When I had a chance to speak with his cardiologist, he educated me on “pumphead”. The link below will go into more detail. I will miss the comical antics, but thrilled I am to have my Barry back. We spend our time in the kitchen discovering low-sodium dishes to keep us healthy. Mom lives with us. She needs the low – sodium dishes more than we do. http://www.heartdisease.about.com/cs/bypasssurgery/a/pumphead.htm
Jill was with me when I saw my Cardiologist “Dr. B” a couple of weeks ago, and he said the echo looked good and in his words “you are cured”, I praise God for that comment. As God is the only reason I am alive today. He also said that doctors get what they call a “save” maybe once every seven to ten years, he considers me as one of those statistics. Well I was so tickled that all the surgical repairs have held up, “Dr.B” also mentioned that there was a time that the Doctors did not know what to do.
For those faithful followers, please don’t give up on me. My life needs my full attention for the time being. Barry is recovering well, physically and mentally, but his recovery is my number one priority at the moment. I will do my best to keep at least one post a week going. Have a great fall. Hope to be writing faithfully again soon!
Please keep us in your thoughts and prayers! God bless you all! Please email me anytime at
I love email.
Thanks! Jill B.
You read about Barry being admitted to the hospital on Wednesday. Thursday he did great. Friday he did great, During the night, his heart went a little haywire and he was trasfered to ICU. I received a phone call fron Barry 5hat he ews in ICU and was due for transfer to Saint Joseph’s Hospital in Atlanta. He will be in Cardiac ICU. I am a bit aggravated with the lofal yocal hospital.
When I went for chemo, it was discovered that I have a Deep Vein Thrombosis in the axillary vein going under my right arm. I have to give myself injections two times daily for the next week. Not sure of the cause, but it is near my chemo port. Hopefully these injections will work out my troubles. Have to get the injection that boosts my white blood tomorrow. Any volunteers to take my place?
Can it get any worse? Maybe so, but then again, maybe not. Hope keeps us moving ahead, one step at a time. Think of a times you were dealt bad news, your own or someone else’s? How did you first react? How did you get through a difficult period in your life? What helped? How did you find the strength—even hope—to cope and begin to heal? How did you find a way to reverse the course and bit by bit, make your life better?
When life decided I needed to make lemonade, someone had a truck load of lemons delivered and dumped them by garage door. I guess for easy access from the kitchen. God knows I have trouble walking, I guess he was just trying to help out.
Hope keeps you going, but the Lord above is raining that hope down on our situation. We need a good saturation of hope. Through our bible studies and attending church regularly, I think we are finally relaxing as issues occur and giving things to God.
Dealing with my diagnosis has becomes easier daily. I’m adapting the attitude. when
If you follow our blog, you know our history, but what you do not know is that my mother lives with us. She has her separate living space, but has no boundaries. Mom is newly diagnosed with Bipolar Disorder and the beginning stages of Lewy Body Dementia. If interested. to find out more about Lewy Body Dementia, follow the following link, http://www.lbda.org/
It was the hardest thing I have ever done in my life. Leaving mom at a hospital to treat mental health issues. That’s my mommy! I’m supposed to take care of her. I cried the entire day we took her over to the hospital.
On top of managing chemotherapy for breast cancer, managing my mom’s care, making sure Barry is OK and assisting my sister when I can with my dad; Barry and I do what we can to help out at church. We are slowly working into volunteering more often, as my energy level rises. We are truly enjoying it.
My dad has been given an undetermined amount of time to live. He is suffering from heart, kidney and liver failure. He has moved into my younger sister’s extra room and monitored by hospice. If anyone needs help with anything, please let me know. Barry and I will see what we can do.
When we first found out about dad, it was the day I found out I have breast cancer. I didn’t know what to do or how to feel. Dealing with the two is a t of emotion to handle at once.
Talking with my sister’s and my blog has helped me pull through this mess. We are taking one day at a time, one problem at a time. We are all hoping daddy will surprise us all, and turn things around. Hope keeps us going, but knowing his salvation will bring peace to each of us.
On chemotherapy, I have not been able to aid my sisters as much as I would like to with dad. The brunt of his care has fallen on Sandy and Kristie. They both know I would be right there with them if I could, dad knows to. My daddy knows I love him. Barry lost his father at a young age. He is my rock, my strength as usual.
I’ll finish this up tomorrow. I’m pooped. Sweet dreams. Mom has gained a little weight. We need to take her dress shopping tomorrow. Could be interesting.
The daily prompts I write from each week come from the following blog by Sharon Bray:
Follow the link to her blog. She is incredible! Thank you, Sharon…..Jill Baynes
I decided to make a list to share a few things not commonly known about me, as well as a few you should know if you keep up with my blog.
2. We love each other and our family, with all our hearts.
4. I love to read, but have not been able to focus on print since having brain surgery. I love my tablet because I can control the font size.
5. I am learning what it means to get dead-dog tired.
6. We love antiques. They have a mystery about them.
7. We enjoy gardening. Watching something come to life that you planted is an amazing feeling.
8. I’m shy. No really……very shy.
9. I love to draw. At one point, I was pretty good. My disability has effected my drawing capabilities. Barry is an engineer, he can draw anything.
10. I love to sing. I miss singing more than my balance, I think. At church, I just hide in the crowd and let it rip. My disability interfered with my vocal chords taking my ability to sing away. At one point, I was a high soprano. Barry has a gorgeous voice when singing, but I believe he prefers to keep it a secret between his mom and the two of us.
11. My father is gravely ill.
12. I have a genetic disease. My body is prone to form tumors, cancerous or benign.
13. I try not to let my illness interfere with life.
14. We love our sweet puppy-dog! She has saved my life many times.
15. Barry and I are caretakers for my mother. Oh, what a challenge. We always claim we love a good challenge.
16. I’m the middle child of three girls.
17. Barry grew-up an only child.
18. We have one child. Barry’s son, Frank. He hates me. His loss.
19. Barry suffered a large territory right MCA in 12/2011. You cannot tell he had anything happen. He is my miracle.
20. Our exes would be perfect for each other.
Well, you now know a more about both of us. There is more, keep reading.
Loss comes in many forms, when you least expect it.
It can mean anything from a loved one to body process, like speech. Loss hurts.
My brain tumor has left my voice weak and I have a lot of trouble speaking. When I have something to say, I feel like I am pushing words out and I can be loud. I cannot help it. I truly cannot help it, nothing hurts more than having people talk over you.
One thing I have learned since becoming disabled, is people are rude. No one has respect for anyone. What has happened to civility?
People do not listen if you have a speech impediment. They automatically discount you as a person, the minute they realize you have a problem. They take what they think you are saying and go with that, even when they have it totally wrong.
It hurts worse when it is those close to you. The pain is worse when someone you love cuts you off mid-sentence without attempting to hear what you have to say. I actually fired someone for insubordinance when they made fun of my voice. It was at a time when Intruly needed the help, but I wasn’t putting up with that type of behavior.
I feel childish complaining. Barry had a stroke in 2011 and mom is in the beginning stages of dementia. In a house full of brain injuries and so many losses, do I have the right to be upset? When I need help with a phone call, should I be given flack or help with a call?
I am becoming used to being disabled, but this part is getting worse and I am struggling with how to handle my home situation!
We live a quiet life at home, not a lot of noise. Noise bothers all of us.
I’m 47 yesrs olf living like a 80 year old. Maybe it will help down the road.
Jill and Barry Baynes