Daily Prompt: Tell us something most people probably don’t know about you.

I decided to make a list to share a few things not commonly known about me, as well as a few you should know if you keep up with my blog.

1. We love the Lord and our life as a Christians.

2. We love each other and our family, with all our hearts.

3. We love small town America, but Barry does love the ATL. After working downtown for so long, he learned to love it!

4. I love to read, but have not been able to focus on print since having brain surgery. I love my tablet because I can control the font size.
5. I am learning what it means to get dead-dog tired.
6. We love antiques. They have a mystery about them.

7. We enjoy gardening. Watching something come to life that you planted is an amazing feeling.

8. I’m shy. No really……very shy.

9. I love to draw. At one point, I was pretty good. My disability has effected my drawing capabilities. Barry is an engineer, he can draw anything.

10. I love to sing. I miss singing more than my balance, I think. At church, I just hide in the crowd and let it rip. My disability interfered with my vocal chords taking my ability to sing away. At one point, I was a high soprano. Barry has a gorgeous voice when singing, but I believe he prefers to keep it a secret between his mom and the two of us.

11. My father is gravely ill.

12. I have a genetic disease. My body is prone to form tumors, cancerous or benign.
13. I try not to let my illness interfere with life.
14. We love our sweet puppy-dog! She has saved my life many times.
15. Barry and I are caretakers for my mother. Oh, what a challenge. We always claim we love a good challenge.

16. I’m the middle child of three girls.
17. Barry grew-up an only child.

18. We have one child. Barry’s son, Frank. He hates me. His loss.
19. Barry suffered a large territory right MCA in 12/2011. You cannot tell he had anything happen. He is my miracle.

20. Our exes would be perfect for each other.

Well, you now know a more about both of us. There is more,  keep reading.


The doctor has decided that my left knee needs replacing. At the moment my left leg is swollen from the ankle up to my hip. I look like I have a cankle. Since my brain tumor surgery, I haven’t been light on my feet.

The falls I have taken, since brain surgery really screwed up my balance, ha done a job on my left knee. I’ve been incredibly lucky and only ended up in the emergency room one time. I had forgotten how bad getting stitches hurts! But all the falling has taken care of any useful cartilage in my knee.

With the breast cancer, I’m still waiting to hear which treatments I will be getting. So, I am sure knee surgery is going to have to wait until after my treatments. I’m making a list of questions, for both doctors, I need to add that to both list.

This is crazy, I’m putting my health issues in a que to be handled in order of importance. Cowden Syndrome strikes again!

Wednesday afternoon, I am having a cyst removed from my right wrist. I’ve had wear a cast a few times when the cyst was enlarged. Apparently to get it to stop, it needs removing. My right hand is my only good hand. I need to keep it in shape as long as possible. I’m not looking forward to a cast or brace again, but I’m a tough cookie. I can handle it! Wish me luck!

For the Week of April 28, 2013: Writing as a Spiritual Practice

Through the exchange of stories, we help heal each other’s spirits…Isn’t this what a spiritual life is about?

–Patrice Vecchione, Writing and the Spiritual Life

Writing for me is an outlet to show my true self. Writing allows me to be completely honest with the world and myself. I have become more verbal on topics I would normally hold in to eat me alive with stress.

Recently, I have felt a new strength developing through my writing. I feel my faith has strengthened and I am changing as a human being. I look at the world differently. As a child, I the beauty of the world amazes and astounds us. As adults we have forgotten what a beautiful place we have been blessed with by our precious Lord. It suggests the old saying. “Stop and Smell the Roses”


I look at my family, friends and life in general differently. My health has been a huge factor in the changes noted in me. I have been through so many lab tests, x-rays, CAT Scans and MRI’s that you could probably see me glowing in space or find me easily with a satellite. Dealing with my rare genetic disorder has brought patience and tolerance into my life (which are 2 things I was sorely lacking in). I’m a nurse. I once thought I was blessed with the patience of Job until receiving my first diagnosis and my roller coaster ride started. After brain surgery, I quickly learned to dislike the word, Time! I’ll re-post from my blog on ‘Time’.

           ******This is a re-blog. I felt it was appropriate to post it again, cuz that old       dislike is the word ‘Time’ is coming out again. I have something go wrong and I feel like crap-ola. All the doctor’s office can say is give it time, they will come in. I truly do not like being in this position. One thing has changed since I wrote this, I have been reminded that I am not supposed to worry about things. I need to put it in God’s hands, he is in control. So much has gone on since 2009, I had kinda forgotten that huge fact. I am actually beginning to feel more at ease about my illness. I do not like getting worse, but I have to remember, I’m just getting closer to him. Honestly, being able to give a little of this worry up is wonderful! I’m loving the peace!*****************************************

I learned to hate that word several years ago. When you are healing after anything to do with the brain, everyone’s favorite thing to say is ” Time, just give it time.”. I do not know about anyone else, but both Barry and I are a tad impatient. Time is a word impatient people can’t stand.

I have to admit that I enjoyed paying Barry back with a few time comments. You have to understand my husband’s quirky sense of humor. I know he thoroughly enjoyed telling me “Give it time.”. He smiled and giggled a little too much after saying it. I turned it around and now use it on him just a little. I tried to hide my snickering.

OK, well down to the news I need to share. My visit to neuro-oncologist was quite informative. He gave us more information than we have ever received from other doctors. He confirmed that I do have Cowden Syndrome. With my medical history, he doesn’t feel the blood test is necessary. He is scheduling an MRI of the brain and a full body PET Scan. He says he hopes they are both negative, but to be ready for the possibility. Said it could be as simple as the thyroid cancer not being totally removed or something else manifesting in the neurological symptoms that have been popping up. Here we go again with that word, TIME! Barry and I are praying and giving it to God. If it’s meant to be……….

I have always been a very compassionate person, to the point of being a sucker. Barry’s stroke strengthened my faith and spirituality. When he was healthy enough, we found a church to call home. We are enjoying getting to know the church community and trying to find which ministry we would like to be part of.

My health would be my precipitating event. Since 2000, I have had 3 spinal epidurals; been through a year with a masseuse; a year with a pain management doctor; been through thyroid cancer three times; my tonsils grew back and removed a second time; had brain surgery for a benign cerebellar tumor; been diagnosed with a rare genetic disease that causes tumors to form through my body; lost my gall bladder. had a ruptured cyst in my left breast and am now facing breast cancer. Surgery scheduled for Tuesday.

I have definitely felt the need to get closer to God and learn more about my religion. I study the bible regularly. I have learned more about the Bible in the last year than I ever did attending church as a child. Barry and I read together every evening. We are trying to get through the bible before summertime.

My re-found spirituality has helped me to notice and appreciate the world around me again. My relationships with my family have improved. I love my husband more everyday! I thank the good Lord daily for bringing him into my life.

Barry and I are now taking care of my mother. She wasn’t in a healthy home-life with her husband. When her health started to decline, she moved in with us. It was a bit of a struggle to start, but we are getting used to each other. I have written about the transition we went through when she moved in. It has been healthy for Barry and I to work on the posts together.

In closing, in my opinion writing has changed my life. I look forward to it daily and enjoy planning my post each week.

For this week:  How has writing deepened your spirituality?  Your compassion or insight?  How have faith and spirituality manifested themselves in your life?  Was there a precipitating event?  Write about the prayer that writing becomes, the spiritual journey that writing has helped you discover.

Big Day Finale…..

Everything went off without a hitch. I guess wearing clean underwear to the doctor actually works. The biopsy didn’t hurt a bit and the Neurosurgeon released me till 2018. I’ll be 52 years old. He said the tumor was not growing and my brain was not showing age, to keep up the good work.

I’m just tickled with the day. although I do have to wait 3-5 days for the results.

I even had the pleasure of running into my ex’s sister-in-law. She was there for her yearly visit. It’s nice to see that dome things never change.

I’m headed home for a nap. Didn’t sleep a lot last night catch you all later.

Big Day

10:30am: Biopsy

1:00pm: Yearly Neurosurgeon visit, hopefully to turn into every 3 years, if he likes my MRI.

Please keep Barry and I in your thoughts and prayers today. Big day for both of us. He will be alone quite a bit tomorrow in the hospital I almost lost him in over a year ago. I’m not sure which I am more anxious over, the biopsy or having to leave him alone. Thanks for your support!