Highlights of 2019

I sit here reminiscing. Remembering the good, the bad, and the “oh no, not agains” and praise God for getting us to a positive point. We may not get around like we used to, but we get it done.

We both have to take things slower, but we keep going. One day at a time. One step at a time. Barry is having a few issues, but he is tough and his strength pulls him through. He is so courageous and I love that man.

He kicks my butt daily; making sure I do what needs to be done. I get unmotivated and negative. He looks at me and I do whatever he says. My speech is worse and my legs are not what they used to be. I despise my wheelchair, but I need it. I have started to accept that fact. Makes life easier.

We have to plan everything, which drives me insane. Barry the planner, not me! I like the freedom of doing what I want to do. My time is my time. One thing though, I love spending time with my hubster. We get closer eveyday.

Our faith will pull us through. I read the bible daily. Forever learning something new. We get to Church Services when we can or pull them up on the internet. We love to hear our preacher. He has a way with words. Of course, he has great material to work with. My eyes cause a problem or two from time to time, but I read as much as I can when I can see. Feels good to read again.

Just a few words today, but I promise more tomorrow. My puppy has had my attention for sometime. I will introduce you all to “Rider” soon. She is quite a character.

Jill B.

 

Echocardiogram Update

echogram

 

Jill was with me when I saw my Cardiologist “Dr. B” a couple of weeks ago, and he said the echo looked good and in his words “you are cured”, I praise God for that comment.  As God is the only reason I am alive today.  He also said that doctors get what they call a “save” maybe once every seven to ten years,  he considers me as one of those statistics. Well I was so tickled that all the surgical repairs have held up,  “Dr.B” also mentioned that there was a time that the Doctors did not know what to do.

 

 

We are back, at least for the moment!

In our earlier post, we stated we’d try to get a post in a week. Maybe more. According to how our day goes! Between radiation treatments, Barry’s doctors appointments and our energy levels; we are lucky to get anything posted. Have patience. I have taken pictures and written posts while sitting around the hospital. A lot of interesting things go on in local hospitals! Just wait……

Mom burned the biscuits…….

Biscuits

Biscuits (Photo credit: naokomc)

Biscuit

Biscuit (Photo credit: Sean MacEntee)

No major ordeal, should not have been at least. I was up getting ready for bible study, when I heard pans being thrown around and doors slamming. I headed to mom;s kitchen to see what was happening.

Mom was helping prepare ham biscuits for Bible Study. The biscuits were not browning on the tops, so she kept leaving them in the oven minute by minute. What she did not count on was the bottom of the biscuit browning faster than the tops. The ham was quite tasty; the biscuits were at least a little crunchy, but tasty. I received no complaints at Bible Study.

Will make mom’s day to know there was…..

Not a single biscuits left……..

Mom Lost Her Washcloths

Mom is adorable. I never know what to expect her to do or say next. She would lose her hind-end if it wasn’t attached to her backside.

Barry and I came in yesterday to find mom frantically searching for something. When Barry went to change clothes, mom told me that she had washed all of her socks and wash clothes, which were now missing. She was wringing out one wash cloth daily, for a 2 weeks now and decided she could find hers on her own. She also decided not to tell us or ask to borrow a wash cloth. I told her to quit being silly and let’s find her wash clothes.

Mom is wonderful. I start the laundry, my disability allows me to do this after someone carries the clothes to the laundry. I cannot pick-up more than 5 pounds at a time. Mom then folds/hangs up and helps put the laundry away. She doesn’t realize how much help this is.

English: Laundry is hung to dry above an Itali...

English: Laundry is hung to dry above an Italian street.                                 (Photo credit: Wikipedia)                                                     

Mom: does this look like a woman that cannot keep up with anything?wpid-IMAG0137.jpg

Absolute Worst Two Weeks Of My Life

The past five years were the beginning of our on-going nightmare. It has been one serious medical issue after another.

Two weeks ago, Barry was hooking the computer to the television for us to stream the evening service. Barry suddenly starts to fall straight backwards. I called out to him several times, without response. Barry takes a blood thinner, so he truly did not need a lump on his head.

When his head hit the wooden ledge on the front door, he started convulsing. He ended up on his right side, I checked him for injuries, covered him up with a blanket and got a pillow. After around three minutes, he started coming around. He was quite confused and wanting to know what happened. By this time, I had gotten mom and 911 had been called. They were incredibly slow. Apparently, the county EMS was hopping all night.

Once in the Emergency Room, they got things going. There was something going on with his heart. He had a strange arrhythmia that the hospital felt needed more attention, so he was admitted.

The next night, there was another episode opting a move to the ICU for better observation. I found out about the transfer when Barry called the next morning to say he was being trasferred to Saint Joseph’s Hospital within the next hour.

I got ready and headed to Atlanta, as quickly as I could. My sweetheart does not like hospitals and I knew he would not want to be alone. I stayed with Barry for two nights.

Then I had a chemo treatment and on Saturday, the injection to boost my white blood cells. The day of my chemo treatment, they discovered a blood clot under my right arm. I started the injections they ordered before chemo. The next day my right arm was acting up, so I requested to see the infusion center fellow doctor. Since starting the injections, shortness of breath occurred everytime I preformed a task or stood up to walk. I was concerned the clot had moved to my lung.

I was sent straight to the Emergency Room for evaluation. We chose to go to the hospital Barry was in. He was already downstairs having a pacemaker put in. Due to my injection, I was unable to see Barry before the procedure.

Our wonderful pastor made it just in time. Barry was thrilled to see him coming. While I was being evaluated, my sister went to check on Barry and let him know what was going on. He was worried. I tried to convince him I was fine, but do men ever really hear what their wives say?

I was released with a diagnosis of pneumonia. More drugs to take. Gotta love it! Kristie and I almost ran to his room. Kristie needed to get on the road soon. Not only does she have a husband and two boys, she had taken the role of chief caregiver to our father. Barry wanted me to stay, but I was running a fever. He had more test scheduled for the next day, he’d never know I was there or not.

We headed home and packed a bag. I was ready for the next day. My nephew was picking me up to drop me at the hospital for a few days. I wore a mask when I had the fever, and removed it when I did not. We met Barry’s surgeon that morning. They were scheduling his surgery for morning. During the night, I recieved a call that my father had passed away. After surgery, I would not be able to see him. He would be moved to CVICU and I would not be able to see him freely. His doctor told me to go home and come back when he is stable.

Barry had an abcess in his heart and the wall of his heart was erroding. They had to re-build a section of the heart to be able to get a valve in and they were unable to use the mechanical valve. A pig valve was placed. He has been in ICU for over 6 days and today, they finally got him off the venilator. He was up in a chair last time I spoke to the nurse. Such a huge improvement since last week. I was terrified of loosing him. I lost my father.

My blog post my be scattered, but I will get back to normal soon. Missed you all!

Jill