Ode to my Lost Hormones

A breast cancer diagnosis, brought questions flooding in,

After the process was explained, one tiny question remained,

scores of specialist could not answer, I was scared silly of what was to come.

 

They called me “Lucky”, to have the tumor caught so early,

The treatments that followed were easy to get through,

Thanks to my cousin, Cindy, for sharing her secrets of survival,

What could have been unbearable, became tolerable,

Thanks for the info cuz, it was much appreciated.

 

Once the lumpectomy was over and the chemo began,

I found myself awestruck of the millions that have gone before me!

all  of the fight, strength, love and passion that has gone before me,

I persevere to continue the fight!

 

Thank you, Ladies for the inspiration to keep going.

I am a survivor, I refused to let this bring me down.

My chemo was coming to an end and I knew radiation was the next step,

 

Little did I know my journey was just beginning.

My sweetheart became seriously ill and needed immediate surgery to survive,

The same night my father went home to be with the Lord. As Barry slept, I told him to be strong,

I knew he was a survivor, Several family members and our Pastor helped me through the hard parts.

 

Life started to calm and a routine began, while Barry was being cared for at the hospital,

I left daily for my radiation treatments and returned just before supper.

Our Jeep had to be on auto-pilot to get me, from the hospital and back daily.

 

Once the oncologist suggested we turn my ovaries off,

first thing I pictured was a little switch that needed to be turned on each ovary, she had other things

in mind, once I knew my options,

 

I took the injection until I could schedule the surgery needed,

I knew the minute I woke from surgery, that my Doctor had been successful.

My first official hot flash was in the recovery room! 

 

The Estrogen and other things produced by my ovaries are now gone, the surgeon had a wee surprise for me,

Soy can mimic Estrogen in the body, soooooooooo…..no over the counter remedies for me!

Now the brown spots, the “hot and cold” flashes and mood swings were just around the corner,

On March 28, 2014, I was thrown face first into MENOPAUSE!

 

Just Write: Loss

Loss comes in many forms, when you least expect it.
It can mean anything from a loved one to body process, like speech. Loss hurts.

My brain tumor has left my voice weak and I have a lot of trouble speaking. When I have something to say, I feel like I am pushing words out and I can be loud.  I cannot help it. I truly cannot help it, nothing hurts more than having people talk over you.

One thing I have learned since becoming disabled, is people are rude. No one has respect for anyone. What has happened to civility?

People do not listen if you have a speech impediment. They automatically discount you as a person, the minute they realize you have a problem. They take what they think you are saying and go with that, even when they have it totally wrong.

It hurts worse when it is those close to you. The pain is worse when someone you love cuts you off mid-sentence without attempting to hear what you have to say. I actually fired someone for insubordinance when they made fun of my voice. It was at a time when Intruly needed the help, but I wasn’t putting up with that type of behavior.

I feel childish complaining. Barry had a stroke in 2011 and mom is in the beginning stages of dementia. In a house full of brain injuries and so many losses, do I have the right to be upset? When I need help with a phone call, should I be given flack or help with a call?

I am becoming used to being disabled, but this part is getting worse and I am struggling with how to handle my home situation!

We live a quiet life at home, not a lot of noise. Noise bothers all of us.

I’m 47 yesrs olf living like a 80 year old. Maybe it will help down the road.

Jill and Barry Baynes

 

I felt so lost…

I felt so lost yesterday, this morning I realized I stayed so busy yesterday, that I never wrote a post. My father had a rough Sunday night. We received a call at 9AM from a friend of Pop’s. He had found Pop unconscious in the floor of his bedroom. He called 911 and Pop was taken to Athens to the hospital. Sandy was on the way when Kristie called. She was working and could not leave. Barry, Mom, and I got dressed and headed to the hospital.  By the time we got there, he was being admitted to the hospital.  Sandy stayed a few minutes longer, then had to leave to do her bus route. She could not find a substitute for the afternoon route.

We stayed until Kristie and the boys arrived. Pop was comfortable in his room. Since he had fallen several times, the nursing staff but an alarm on the bed. Pop could not get up without someone hearing an alarm. This made us feel safe to leave him alone for the night. They said he would be discharged the next day. Between Libor and us, someone could pick him up and settled at home before Kristie was home from work.

Pop has a implanted defibrillator. It went off on the 29th of April. He had a heart attack and that defibrillator saved his life. The cardiologist added a new drug that Pop feeling nervous and not good at all. He could not sleep for anything. He gradually felt worse every day on the new drug. We called the doctor’s office for assistance. They did not believe it was the new medicine and stated they would take a good look at him in the office st his appointment. He was scheduled to be in there in 2 days. He was due to see the cardiologist tomorrow. I guess he could not wait.

God leads and guides our daily activities. God must be telling Pop  it is not his time yet. He’s got to hang out with us a while longer. He ready to help us get his affairs in order. Barry and I will be going up to help him set things up this weekend. We’ll have to work things out for healthcare POA’s and type his will up for him. Sandy will have to sign everything when she gets home. She and mom are attending my Nephew, Daniel’s college graduation this weekend. Mom is really looking forward to it. I hope they have a great time.

Life will eventually slow down. My second surgery has been scheduled for May 28th. Looks like my summer will Will be spent healing. YoU’ll still have decisions to make after the surgery. Radiation and chemotherapy are still a big unknown in my life.

Saw my neurologist this morning. He wants me to have a few health issues checked out and deal with the chemotherapy before he changes anything. So I feel kinda lost or on hold until a few issues are settled.I’m digging deep to pull my patience out and focusing on my health and diet while at home.trying recipes that are results to chew and swallow. My body is getting to the point that it has a little trouble doing those things lately.God is guiding me with this issue. I pray and ask for guidance and patience daily. I have figured out it is not my place to ask God why I am in this shape any longer. It is in his plan and I am in his hands. Not going to Strasbourg anything…..at least I’m going to give it my best shot at trying not to stress. God will guide me!

You cannot catch my brain tumor, so please do not discount me!

I have no problem with the“nice”coming out in people, but where does all this negativity in people come from.

When I was younger, it was odd to see a person with a disability out shopping. I, personally, think it is wonderful to see senior adults and other disabled people getting out and doing for themselves. Makes you feel good.

I ran into a couple of the most negative human beings on earth this week. Ironically, while out shopping. I was using the motorized shopping carts in both instances. At Kroger, the lady actually raised her voice and accused me of attempting to run over her when I only drove around her to get down the aisle.

Then at Wal-Mart, I was turning to go to the next aisle when I almost hit a woman and her shopping cart head on. I said “excuse me” and started around her. Her response was to state, “Good grief, I said I was sorry!” If one more person tells me to let someone have the cart, that really needs it. I think I’ll scream at them. But I do enjoy the look on their faces when I “tell them to tell it to my brain tumor!”

Priceless……I still am not sure I understand either one, but what can I do? I intend to keep helping with the household duties, which include shopping. Just because my body doesn’t work like it used to, doesn’t mean I can’t shop!

I Wanna Run Away!

Please, someone tell me when it is okay to run away. I’m not sure how much more I can take before I crack. 

I live the “Life of Riley“. Honestly, I not sure what that means. Was it a TV show? Radio show? Cartoon? I’m going to look it up. The situations I’ve heard it used in usually involved someone having it made; not in need of anything; someone spoiled rotten. All of the above, at times, can describe my life.

I live in a beautiful home with the perfect husband and family pets. We have one boxer and one fish. One step-son that keeps his distance.

My husband and I are raising my mother. It can be a challenge at times. But we make it.

We are far from well off or rich, but we are comfy. A lot of people today can’t say that. It really hurts Barry and I to see others struggle. We help when we can, but keeping up with medical bills will eat you alive. 

Since 2009, Barry and I have run from doctor to doctor trying to figure my illness out. It is starting to feel like a waste of time. Every time I see a physician, something else is wrong.

Is this a never-ending battle? Is all the running around doing a bit of good? I guess I’m a little tired of being sick. I feel like my life is falling apart and I’m not sure what to do.

That doctor, last week, really threw me for a loop. Just uttering those 2 little words has my head in the toilet.

It was like the day the doctor told me about the brain tumor. “Oh by the way, you have a brain tumor.” That is how he told me. He added a few other things to it, but that was enough to shatter my world. My head was in a spin then, and it is spinning like a top now.

I’m not going to do anything stupid. God has kept me around for s reason. I have too much life left to live to do anything stupid, I’m just trying to write this down to see if it will shake me out of this funk.

I should be sleeping . Big birthday party tomorrow. Going to be a long day, I need my rest. Barry is snoring in the chair next to me as I type. Maggie is snoring on the couch. Maybe I should follow suit and go to sleep. Maybe I’ll feel better in the morning. 

Hope everyone has a good weekend. I’m trying to turn mine around. Be sweet!

Our 200th post, There is a link to the page, but I also put the post below to avoid confusion

 Click the link for our 200th post:

https://gegebearbear.wordpress.com/200th-post-can-you-believe-it/

The 200th post is below, but I’m gonna leave the page up too. I have removed any mention of a certain person who shall remain nameless. Enough said.

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We thought this post required something special. I find it difficult to believe we’ve been blogging since September 8, 2012! We have been on a journey since that date, but we are holding on strong and closer than ever.

This blog wasn’t our idea, but we have thoroughly enjoyed compiling information for post together. It truly has been therapeutic for both of us. Who would have thought that a counselor, specializing in neurological issues, would know what they were talking about? Maybe that was what we were paying them for? At least our insurance was…..

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We have done so well. Blogging has brought new friends into our lives and seen a few leave. The good seeds continue to take root as the friendships flourish. Others are like annual flowers, they are incredible at first then the heat of the sun fades their colors. Then you pull the annuals and throw them out to put new color in your garden. It is a shame all flowers and friendships cannot be timeless.  Enough said on the matter.

Barry and I continue to enjoy each blogger we have met on WordPress and stay sorrowful over those that did not work out. We have met some incredible people, who have taught us both a lot. Papazilla actually got me to debate a topic in writing, which is something I avoid like. I do not speak well, so there are certain things I do not freely take part in.

I have a rare genetic disorder. I felt so alone dealing with my illness at times, then my friends and family remind me I am not alone. The internet is an amazing tool to use to connect with people you may not meet normally. Barry is wonderful and my best choice to discuss my disease with. Thanks to everyone for being wonderful!

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BrainTumorThursday on Twitter has become a weekly part of my life. When I can take part, I do. When I can’t, I make sure one of my posts, about a brain tumor issue, is on the page. There is such a huge need for funding for research. Brain Tumors kill too many people yearly. I’m including a link to a national foundation for when you would like more information.

Twitter link:

http://paper.li/TumorWarrior/1343039984

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http://www.abta.org/about-us/

http://www.sbtf.org/home.html

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Two groups of hardworking people working to stop the pain of brain tumors. Please check them out. Barry and I take part regularly in the SBTF run/walk to raise money in Atlanta. We enjoy the get together. We also take part in a monthly support group for brain tumor patients. Very helpful group, when figuring life out after a brain tumor.

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http://www.emoryhealthcare.org

I’m including the website for the support group below, check them out. Very enjoyable group.

http://www.neurosurgery.emory.edu/BTSG/index.htm

Tons of extremely hardworking people, check them out!

Check out #BrainTumorThursday on Twitter. Just do a search. Do not forget the hash tag.

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Other health issues in constant need of funding are mini-strokes and strokes. As a nurse, I know what to look for and what they look like when occurring. Many people have health issues happen today and are clueless. They have no idea what is happening or whether to consider it an emergency or not. It is truly sad in my eyes that we are not more educated about our bodies and how we should respond to them when they scream at you,

 ‘HEY, I NEED ATTENTION!’

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I’m so glad I was home with Barry when his stroke occurred. He’s an extremely healthy, highly intelligent man. He did not have a clue or remember anything past us getting out of bed that morning. If he had been home alone, he would not be with us at the moment. God is good and decided he wasn’t finished with Barry. He helped me get the right people on to Barry, then the doctors and hospitals took over. New technology saved Barry’s life. Emory University Hospital had Barry in the procedure room before I made it to the hospital. I thank the Good Lord above for guiding the doctors in the proper care Barry needed. Although, his stroke continued once the clot was out of the picture, Barry is alive and thriving.

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http://www.heart.org/HEARTORG/#mainContent

http://www.strokeassociation.org/STROKEORG/

http://www.stroke.org/site/PageNavigator/HOME

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Since starting our blog, our lives are finally calming down. My illness is settling into a routine of check-ups and Barry is getting stronger each day. Mom is even settling into our routine(Surprise, surprise)

Barry and I are about to embark on a new voyage in our lives. When he retires, we will have time to run around and do what we want. Travel; be lazy;  work in the yard; go to church; visit family; who knows, maybe we will see a movie at the theater…..I have a huge list of ideas, I just have to talk Barry into it. Barry will have a tough time adjusting to staying home. He has driven downtown(Atlanta) to work for over 30 years, sleeping past 6am is already a challenge for him on the weekends. After 9 years of marriage, I can say one thing about Barry L. Baynes. The sweet man despises change!

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If you do not know CPR, LEARN IT! You may need it some day!

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My Brain Tumor is ruling my body today!

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To start the day off, I woke up a grumpy mess. Barry and my left arm told me why I was so tired this morning, when I got alert enough to listen.

Apparently, I spent the night hitting the wall, bed, myself and Barry, all night. My arm hurts so bad this morning. I also managed to bloody my nose last night and I have bruises on my forehead.

My left hand isn’t bruised yet, but it sounds and feels like it shoud be. Barry told me the dog wouldn’t get in the bed with us last night, so I was scaring my poor puppy during the night.

The morning did not get any better, my balance is terrible and my right hand is even shaking. My head feels like it will blow off at any second and the pain is radiating from the base of my skull, where the tumor is.

My eyes are somewhat focused, but a took a lot of exercising to get them there. It was mid-morning before I could focus. I took a nap, that hasn’t helped. Drugs and more sleep are next.Also a call to the neurologists office.

I probably will go crawl back in bed and hope this is gone tomorrow. I cannot stand when that dyuiiufdfv tumor takes over, I scare my husband. Since the stroke, he’s more sensitive and I hate he has to deal with me like this.

I should have known something was coming on. I spent yesterday stuck in giggle mode. Why couldn’t I get a day or two more of that. Everything was funny yesterday. I need to make sure I tell the neurologist’s office when they call.

You cannot catch my brain tumor, so please do not discount me!

 

Ok, finally got the keyboard to come up. I haven’t been
posting due to my eyesight. I have no problem with the “nice” coming out in
people, but where does all this negativity in people come from. When I was
younger, it was odd to see a disabled person out shopping. I, personally, think
it is wonderful to see senior adults and other disabled people getting out and
doing for themselves. Makes you feel good.

I ran into a couple of the most negative human beings on earth this week. Ironically, while out shopping. I was using the motorised shopping carts in both instances. At Kroger, the lady actually raised her voice and accused me of attempting to run over her when I only drove around her to get down the aisle. Then at Walmart, I was turning to go to the next aisle when I almost hit a lady and her shopping cart head on. I said “excuse me” and started around her. Her response was to state, “Good grief, I said I was sorry!” If one more person tells me to let someone have the cart, that really needs it. I think I’ll scream at them. But I do enjoy the look on their faces when I “tell them to tell it to my brain
tumor!” Priceless……

I still am not sure I understand either one, but what can I do? I intend to keep helping with the household duties, which include shopping. Just because my body doesn’t work like it used to, doesn’t mean I can’t shop!