Loss comes in many forms, when you least expect it.
It can mean anything from a loved one to body process, like speech. Loss hurts.
My brain tumor has left my voice weak and I have a lot of trouble speaking. When I have something to say, I feel like I am pushing words out and I can be loud. I cannot help it. I truly cannot help it, nothing hurts more than having people talk over you.
One thing I have learned since becoming disabled, is people are rude. No one has respect for anyone. What has happened to civility?
People do not listen if you have a speech impediment. They automatically discount you as a person, the minute they realize you have a problem. They take what they think you are saying and go with that, even when they have it totally wrong.
It hurts worse when it is those close to you. The pain is worse when someone you love cuts you off mid-sentence without attempting to hear what you have to say. I actually fired someone for insubordinance when they made fun of my voice. It was at a time when Intruly needed the help, but I wasn’t putting up with that type of behavior.
I feel childish complaining. Barry had a stroke in 2011 and mom is in the beginning stages of dementia. In a house full of brain injuries and so many losses, do I have the right to be upset? When I need help with a phone call, should I be given flack or help with a call?
I am becoming used to being disabled, but this part is getting worse and I am struggling with how to handle my home situation!
We live a quiet life at home, not a lot of noise. Noise bothers all of us.
I’m 47 yesrs olf living like a 80 year old. Maybe it will help down the road.
Jill and Barry Baynes
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