Guess what? I figured out why. I stood my ground and refused to come off one, but I came off the Baclofen totally. My dry mouth was gone, but I could clear a countertop with my left hand without trying and my left leg started doing circles with every step I took. I had to have someone with me all day because my eyes were so bad. In the middle of my treatment, I was transferred to another neurologist that felt he needed to undo everything the other neurologist had done in two years. The self-professed “brilliant Botox specialist of the clinic” made the statement to my new doc that he did not feel I had dystonia. My doctor decided to see and then decided I needed to see a doctor that knows more about my condition than he did. My photo is on this blog, do I look like a guinea pig? I go to these specialist because they are specialist, supposedly.
Honestly seeing the neuro-oncologist was the best idea anyone has had since brain surgery. The full body PET Scan lead to the discovery of a problem I did not know I had. I have discovered since the surgery, I have a little difficult telling when I am sick. I hurt and do not feel well most of the time and I tend to ignore some things if it means a trip to the doctor. Barry and do not have wha you could call a social life. We go to appointments, church, see family and the grocery store. I’m truly not complaining. At this time in our lives, it is a necessity. We do the important stuff. Oh and we hit the gym. Barry is really buffing up. Good for us!