Category Archives: family matters

Big Day Finale…..

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Everything went off without a hitch. I guess wearing clean underwear to the doctor actually works. The biopsy didn’t hurt a bit and the Neurosurgeon released me till 2018. I’ll be 52 years old. He said the tumor was not growing and my brain was not showing age, to keep up the good work.

I’m just tickled with the day. although I do have to wait 3-5 days for the results.

I even had the pleasure of running into my ex’s sister-in-law. She was there for her yearly visit. It’s nice to see that dome things never change.

I’m headed home for a nap. Didn’t sleep a lot last night catch you all later.

Big Day

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10:30am: Biopsy

1:00pm: Yearly Neurosurgeon visit, hopefully to turn into every 3 years, if he likes my MRI.

Please keep Barry and I in your thoughts and prayers today. Big day for both of us. He will be alone quite a bit tomorrow in the hospital I almost lost him in over a year ago. I’m not sure which I am more anxious over, the biopsy or having to leave him alone. Thanks for your support!

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Dancing, Gray New Balance Sport Shoes

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My mom is married to a very sweet man named James. The situation the two were living in, made my sisters and our families uncomfortable. My abilities around the house and my level of functioning was making everyone a bit nervous, especially Barry. Mom needed a home, we needed help. Ta-da……Barry and I got a new roommate. James did not wish to come with her. He wished to stay near his family.

My mother is as sweet as she can be when she wants to be; then at the drop of a hat, she is a totally different woman. She is extremely protective of her girls and will do anything to protect us.

At this moment, she realizes, I am stressing about tomorrow. I am not sure if she is joking with me about this dream, or she really had it. True or not, I have to share. I cannot believe she even thought this up, I’m hoping she actually dreamed it.

Mom discussed her dream with me, when I went to give her a thirty-minute warning to leave for church. She first told me she wasn’t going because she ate too much salt the day before, then she starts giggling. When I asked what was so funny, she asked me to sit down and tell me about her night.

As she was sleeping, she swears she opened her eyes and was awake through all of this. She says she opened her eyes and could see herself as if looking in a mirror. She stuck her tongue out at herself, the image did the same. She moved her left hand and touched palm to palm with the image. She says she closed her eyes, when she opened them, the image was gone.

Next she started to hear country music playing. She looked up at the ceiling to see her gray, New Balance sport shoes dancing on across the ceiling. Mom loves shoes, and has a ton of them. She said the next thing she knew, her closet door flew open and her shoes, all of them, proceeded to dance up the wall to join her  sport shoes doing their thing on the ceiling. She laid down on the bed to watch the show.

She states the next thing she knew, her alarm clock went off. When she went to get out of bed, her shoes were all over her bedroom floor. At that moment, she heard a man laughing in her bedroom door, she looked up to see her father in her doorway.

His comment to her was she never could keep her room clean. He closed the door. She chased after him, at the moment her foot hit the floor, she was wide awake. She opened her door and he, of course was gone…….

Gotta love her………..

 

Monday Jitters

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Give, it to God, Jill.  Don’t let all of these crazy things worry you. Take one day at a time and one appointment at a time. That is all you can do, do not over think what is going on next week and let God work in your life. He is the one with the plan for your life. Let him work it. Be strong for yourself, Barry and you family. It is inside of you. Be strong. No matter what the outcome, be strong. She your strength in your actions. Barry needs to know you are OK and tough. Be strong for him. Be encouraging for Barry. He needs to see your strength.

Please forgive my nervous outbreak. A lot going on next week that I am not sure I’m prepared to deal with. But I’m in God’s hands and he’ll take care of me. I’m more worried about Barry than myself. Hospitals make him nervous, especially Emory, since the stroke. I’m sure it will all work out. Monday is the key. Just take it one day at a time. 

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My eyes playing tricks on me…..just an example….please forgive me Pastor

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When leaving church services a few days ago, my eyes were acting strange all day. Barry and I walked out the front door toward the parking lot. Our weather, has been a huge range from sunny to rainy to windy to stormy. Well, this night, it was burrrrrrr cold and windy.

I looked off to the right of the parking lot because something caught my eye. I turned and asked Barry if there a fire toward the Pastor’s house?

He started laughing and informed me that what I was seeing was the wind blowing the stop sign, with the parking lot lights reflected on the stop sign. My eyes just made it seem further away than it was. I was looking in the direction of the Pastor’s house.

The reason there may be a fire toward the Pastor’s house is an entirely different story, I don’t feel it is proper to share without permission. I’ll just tell you, it is a good one! He has video to prove it.

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Yearly MRI √

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With Cowden’s Syndrome, you have to follow a set schedule to keep up with which screening is next. Then, of course, if there is a problem, the screening and recheck can run together. 

Today, I went for my yearly MRI, about the brain tumor on Monday at 1pm. This is where screenings can run together.

I had a breast issue last year that caused them to redo my mammogram, which has led to other mammograms, ultrasounds and now, 6 months later, a biopsy. Scheduled Monday, one hour before my neurosurgeon appointment. At least they are within walking distance of each other.

The sad thing is, my next yearly mammogram is due in April. But I guess my mammograms are about to put a kink in my set schedule. In my schedule thus far, gynecologist, endocrinologist, neurosurgeon, neurologist, neuro-oncologist, gastroenterologist, dentist, urologist, dermatologist, psychiatrist, counselor, genetics counselor, general practitioner, breast specialist, otolaryngologist, cardiologist, massage therapist, and acupuncturist. 

Now, that I have boogered my knee up, I have to add an orthopedic doctor in there. I am sure surgery is in the future for that, which will add physical therapy into the mix.If surgery is in the mix for the next few months, I need to see about getting the lump taken out of my right wrist while they are at it.

The fancy MRI on my left knee next Thursday, then see the doctor Friday. The endocrinologist is in the mix next week somewhere. I’m getting tired thinking about next week. 

Barry is my riding buddy. I’d be lost without him. I can’t drive long distances, so he gets me to the long distance rides. I’m tired of being organized. I never considered myself organized, but with all of this, you have to be. All of the above is just me, included in my mix are Barry’s appointments, as well as several I take mom to. I’m not making light of their appointments, mine takes up more calendar space than their’s does. We should hire a good personal assistant……

Double Whammy…you have to love doctors!!!

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While at a checkup with the Allergist today, I received a phone call from the genetics counselor assigned to me. She had received the results of my genetics test. I apparently do have the rare genetic disorder all the doctors have been avoiding discussing with me. So I am one in 250,000 people in the United States blessed with this genetic nightmare.

Even though one sweet doctor had taken it upon himself to tell me that I could be considered diagnosed with the disease because of my medical history; I felt like a rock had been dropped in my lap. Reality smacked me in the face and now I had to discuss this with my family and get them to be tested. I hate being like this.

I would never wish this on my worst enemy, I certainly do not need to worry about my sisters, nieces and nephews having to deal with this. What about their children? This is just so much to deal with. I was coping fine, until I knew for sure. Now…I need to pray on this…

 

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Daily Prompt: A Plot of Earth

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You’re given a plot of land and have the financial resources to do what you please. What’s the plan?

We’ve done the big house thing, so to start…We’d have a modest handicapped accessible home-built, near the back of the property. Single level of course, but with all the technology available to make life easy around the house for a disabled person. One room would be set aside for a gym. I need a place to work out, instead of my dining room. There has to be huge porches with swings across the front and back of the house. One end of each porch would be screened in. I love to sit and enjoy the outdoor sounds.

Second, we’d have a small guest house built behind our house for my mom. She can design and pick out what she wants. She needs to include a guest room for company.

Next would come the raised garden, close to the house with benches everywhere. It would have a rose-covered arbor at the entrance with every plant possible to attract butterflies and birds by the dozen.

A covered patio with a table or other area to relax and get out of the rain. Somewhere close by, there would be a small garden shed to store all my tools and other essentials. I’d have to have some form of water feature in the garden. It would be great to have a fountain in the center of the garden. The birds and butterflies would love that!

To one side of the house would be Barry‘s garage sanctuary. He can work on cars, build things and do whatever he wants in his man cave. That would be his place to design and setup.

I can’t forget about our treasured pets. We’d have to have an area of the yard fenced in and a state of the art doggie-door for Miss Maggie to go in and out on her own. The door needs to lock the minute Mags is back in the house.

Then there is Shotgun, our Japanese Fighting Fish. He will need a larger tank somewhere near the kitchen. We can decorate it like the bottom of the ocean, but I need to be able to handle it to clean and change the water. Shotgun loves hiding in the roots of my plant in the aquarium.

The plot of earth would be full of big shade trees and a long drive way. I’d need to ride by bicycle to the mailbox. Along with the garden, the house would be surrounded by flowers and shrubs. Something would be blooming year round.

To all the blogs I love to read: For our Blogging Friends!

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TO ALL THE BLOGS I LOVE TO READ

(intro/chorus) To all the blogs I love to read;

who’ve traveled on and off  my Google chrome;

I’m pleased they came along;

I devote this precious song;

To all the blogs I love to read;

To all the blogs I once waded through;

and may I say I’ve read the best;

as a blogger you helped me grow;

I owe much I know;

To all the blogs I love to read;

Change is forever on the bloggers mind;

when you sit down to write;

the words start to flow;

but you’ll never know where to end;

To all the blogs I shared with my friends;

who are no longer on the blogosphere;

we are glad you you blogged with us;

I devote this crazy song;

To all the blogs that are no longer here;

To all the blogs that have inspired me to go on;

who filled my nights with a magnificent read;

 a place is in my heart;

to shelter memories of blogs used to be;

to all the blogs that inspired me to go on;

Change is always in the air, blowing me here and there;

when I try to speak;

the winds billow up;

and blow my words away;

To all the bloggers that have gone another way;

(chorus) To all the blogs I love to read;

who’ve traveled on and off  my Google chrome;

I’m pleased they came along;

I devote this precious song;

To all the blogs I love to read;

 

 

(chorus) To all the blogs I love to read;

who’ve traveled on and off  my Google chrome;

I’m pleased they came along;

I devote this precious song;

To all the blogs I love to read.

 

 

 

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We know this is silly, but we wanted a cute way to wish everyone a happy, healthy and Chocolate-filled Valentine’s Day! We hope you all had a beautiful day! The song goes to the tune of ‘To all the girls I loved before’, by Mr. Willie Nelson. For those of you who do not have a clue who Willie Nelson is, try Google…heeeheee