Category Archives: Old Mom

Daily Prompt: All grown Up

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When was the first time you really felt like a grown up (if ever)?

I knew I was a grown-up the day I ordered my first pair of eye glasses, without my parents health insurance. I had my insurance when it paid about 30% of what my dad’s had paid.  I was in sticker shock.

Also, I got a little angry with my mother. The day I ordered those glasses, is the day I found out they had made thin eyeglass lenses for years. My mother had made me suffer through heavy eyeglasses my entire life, when we had insurance that would have paid for a lighter lenses. 

I was the object of incessant ridicule all through school, called ”four-eyes”, and many other ugly names because of my thick eyeglasses. But I guess I can say, that all the jokes toughened me up and I handle tough situations better because of the ‘ragging’ I tolerated as a child.

Mom would always tell me, it’s just words. She was right, words are just words. They can hurt in a big way! I survived. From what I hear, kids are as mean today, if not meaner, than ever in school.

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Our 200th post, There is a link to the page, but I also put the post below to avoid confusion

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 Click the link for our 200th post:

https://gegebearbear.wordpress.com/200th-post-can-you-believe-it/

The 200th post is below, but I’m gonna leave the page up too. I have removed any mention of a certain person who shall remain nameless. Enough said.

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We thought this post required something special. I find it difficult to believe we’ve been blogging since September 8, 2012! We have been on a journey since that date, but we are holding on strong and closer than ever.

This blog wasn’t our idea, but we have thoroughly enjoyed compiling information for post together. It truly has been therapeutic for both of us. Who would have thought that a counselor, specializing in neurological issues, would know what they were talking about? Maybe that was what we were paying them for? At least our insurance was…..

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We have done so well. Blogging has brought new friends into our lives and seen a few leave. The good seeds continue to take root as the friendships flourish. Others are like annual flowers, they are incredible at first then the heat of the sun fades their colors. Then you pull the annuals and throw them out to put new color in your garden. It is a shame all flowers and friendships cannot be timeless.  Enough said on the matter.

Barry and I continue to enjoy each blogger we have met on WordPress and stay sorrowful over those that did not work out. We have met some incredible people, who have taught us both a lot. Papazilla actually got me to debate a topic in writing, which is something I avoid like. I do not speak well, so there are certain things I do not freely take part in.

I have a rare genetic disorder. I felt so alone dealing with my illness at times, then my friends and family remind me I am not alone. The internet is an amazing tool to use to connect with people you may not meet normally. Barry is wonderful and my best choice to discuss my disease with. Thanks to everyone for being wonderful!

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BrainTumorThursday on Twitter has become a weekly part of my life. When I can take part, I do. When I can’t, I make sure one of my posts, about a brain tumor issue, is on the page. There is such a huge need for funding for research. Brain Tumors kill too many people yearly. I’m including a link to a national foundation for when you would like more information.

Twitter link:

http://paper.li/TumorWarrior/1343039984

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http://www.abta.org/about-us/

http://www.sbtf.org/home.html

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Two groups of hardworking people working to stop the pain of brain tumors. Please check them out. Barry and I take part regularly in the SBTF run/walk to raise money in Atlanta. We enjoy the get together. We also take part in a monthly support group for brain tumor patients. Very helpful group, when figuring life out after a brain tumor.

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http://www.emoryhealthcare.org

I’m including the website for the support group below, check them out. Very enjoyable group.

http://www.neurosurgery.emory.edu/BTSG/index.htm

Tons of extremely hardworking people, check them out!

Check out #BrainTumorThursday on Twitter. Just do a search. Do not forget the hash tag.

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Other health issues in constant need of funding are mini-strokes and strokes. As a nurse, I know what to look for and what they look like when occurring. Many people have health issues happen today and are clueless. They have no idea what is happening or whether to consider it an emergency or not. It is truly sad in my eyes that we are not more educated about our bodies and how we should respond to them when they scream at you,

 ‘HEY, I NEED ATTENTION!’

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I’m so glad I was home with Barry when his stroke occurred. He’s an extremely healthy, highly intelligent man. He did not have a clue or remember anything past us getting out of bed that morning. If he had been home alone, he would not be with us at the moment. God is good and decided he wasn’t finished with Barry. He helped me get the right people on to Barry, then the doctors and hospitals took over. New technology saved Barry’s life. Emory University Hospital had Barry in the procedure room before I made it to the hospital. I thank the Good Lord above for guiding the doctors in the proper care Barry needed. Although, his stroke continued once the clot was out of the picture, Barry is alive and thriving.

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http://www.heart.org/HEARTORG/#mainContent

http://www.strokeassociation.org/STROKEORG/

http://www.stroke.org/site/PageNavigator/HOME

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Since starting our blog, our lives are finally calming down. My illness is settling into a routine of check-ups and Barry is getting stronger each day. Mom is even settling into our routine(Surprise, surprise)

Barry and I are about to embark on a new voyage in our lives. When he retires, we will have time to run around and do what we want. Travel; be lazy;  work in the yard; go to church; visit family; who knows, maybe we will see a movie at the theater…..I have a huge list of ideas, I just have to talk Barry into it. Barry will have a tough time adjusting to staying home. He has driven downtown(Atlanta) to work for over 30 years, sleeping past 6am is already a challenge for him on the weekends. After 9 years of marriage, I can say one thing about Barry L. Baynes. The sweet man despises change!

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If you do not know CPR, LEARN IT! You may need it some day!

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Round Four Finale

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MM900295156Biopsy results are NEGATIVE! NO cancer. They still want me to have an MRI, because they do not have a solution for the problem. But no cancer!!!!!!!Thank you, thank you, thank you!

Saw endocrinologist today about thyroid scan. It was clear, but there is a lymph node she wants to follow. Which means she wants to schedule a thyroid scan! I hate the thought of another thyroid scan. You have to put your system into hypothyroidism before the test.

Last time, they were out of the injection to do this for you and I had to quit taking my medication for 3 weeks before my body converted to hypothyroidism. I was so weak, I could not walk. I was having to use my wheelchair to get around everywhere.

But I’ll do what I need to do to make sure I stay cancer-free. I may not be happy, but I’ll do it. I’m hoping Thyrogen is available and taken care of in 2 days.

Get results of the MRI on my left knee, next Tuesday. I have the feeling surgery is around the corner. But again, I’ll do what I have to do to stay healthy.

I can’t wait to get back to my full exercise routine. I miss it! Gonna light a fire under Barry’s fanny to get him moving with me. We may even get Maggie in on it!

Well, I’m putting this tablet down for the time being. We have to run an errand. Round 5 starts next week, with God leading the way. I hate to think where I’d be without the good Lord guiding us through this mess. Still taking things one day at a time. Thanks for your comments and support.

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Daily Prompt: First Light

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Remember when you wrote down the first thought you had this morning? Great. Now write a post about it.

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Mom has been having difficulties sleeping and having crazy dreams. She told me about a new one a few days ago, the minute I awoke, I was worried about mom and her crazy dreams. That is what I wrote down yesterday. Check with mom about her dreams and how she slept.

I just went to check on her. She was awake, doing exercises. She said she slept fine, but continues to have the crazy dreams. She swears when she woke up, that the ceiling and her bed was covered with crazy-spider looking creatures. She says she wasn’t scared, she tried touching them to see if they are real and they are not. I requested that she bring the doctors phone number to me to get her scheduled for an evaluation.

This has to be some form of medication reaction. She is healthy as a horse, otherwise. The only changes are medication-related. She claims she has tried to make appointments with the neurologist, but has been unable to get through. I’ll do the calling today, see what happens. It hurts to see mom going through some of these things. I say if it is fixable, let’s be able proactive and fix it! 

Mom is dreaming again….Diggin’ Taters..

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This is a strange one, because mom used to tell us this story when we asked for a good scare. She was a live participant in the story this time. 

Mom grew up on a farm. She, her brothers and sisters, did a lot of the gardening to provide food for the family. To put it in mom’s words, she is not a stranger to ‘diggin taters’. 

Mom is the oldest of eleven children. So when she had the younger children, she was in charge. In her dream, mom and three of the older kids are in the potato patch digging potatoes for dinner.

To set the stage properly, it was a windy day. It felt like a storm was blowing up. The wind was whistling through the trees,  sounding like someone trying to talk to you. The air was thick and heavy, reminding everyone summer storms can be dangerous  and you do not want to get caught out in the field in one. Mom was trying to rush everyone, so they could get back to the house without getting caught in the weather. 

My Aunt Jo said to mom, ‘did you hear that?’ Mom told her she didn’t hear anything and keep working. Then, my other Aunt Bib asked mom the same question. She yelled at the two of them to quit playing games and get back to work.

My Uncle Owen decided to keep what he had heard to himself, because he didn’t want my mother yelling at him. Truth be told, it sounded like the wind was talking to them and he knew mom had heard exactly what the other three had.

There appeared to be a voice in the wind saying;

‘Who has my big toe? I want my big toe!’

The four kids kept working, wanting to make grandma happy with the amount of potatoes they brought back. The wind continued to whistle and all four kids were starting to hear the voice.

Who has my big toe? I want my big toe!’

By this time, they had enough potatoes for a couple of days, so they gathered their tools and tater sack and headed back to the house. No one said a word to anyone about the strange voice.

That night in bed, Aunt Jo and Uncle Owen woke mom up to tell her they were hearing the voice in the house. The difference was, it was followed by footsteps. She quickly told them it was their imagination and to get back to bed.

She tried to get back to sleep, but discovered sleep eluded her.

She heard someone say, ‘Who has my big toe?’

All she could do was think about what she had just heard.  She also heard every noise, bump and bang the house made in the night.  

The next day, mom and the other kids were outside playing when they heard Grandma Frank scream. They went running into the kitchen to see what the problem was.

Grandma Frank had dumped the bag of taters in the sink to clean them up and prepare them for storage. She was standing near the sink shaking from head to toe and pointing at the sink. She was mumbling incoherently. Mom went to the sink and peered inside. Laying there, among the potatoes they had dug up yesterday, was a big toe!

Big Day Finale…..

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Everything went off without a hitch. I guess wearing clean underwear to the doctor actually works. The biopsy didn’t hurt a bit and the Neurosurgeon released me till 2018. I’ll be 52 years old. He said the tumor was not growing and my brain was not showing age, to keep up the good work.

I’m just tickled with the day. although I do have to wait 3-5 days for the results.

I even had the pleasure of running into my ex’s sister-in-law. She was there for her yearly visit. It’s nice to see that dome things never change.

I’m headed home for a nap. Didn’t sleep a lot last night catch you all later.

Dancing, Gray New Balance Sport Shoes

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My mom is married to a very sweet man named James. The situation the two were living in, made my sisters and our families uncomfortable. My abilities around the house and my level of functioning was making everyone a bit nervous, especially Barry. Mom needed a home, we needed help. Ta-da……Barry and I got a new roommate. James did not wish to come with her. He wished to stay near his family.

My mother is as sweet as she can be when she wants to be; then at the drop of a hat, she is a totally different woman. She is extremely protective of her girls and will do anything to protect us.

At this moment, she realizes, I am stressing about tomorrow. I am not sure if she is joking with me about this dream, or she really had it. True or not, I have to share. I cannot believe she even thought this up, I’m hoping she actually dreamed it.

Mom discussed her dream with me, when I went to give her a thirty-minute warning to leave for church. She first told me she wasn’t going because she ate too much salt the day before, then she starts giggling. When I asked what was so funny, she asked me to sit down and tell me about her night.

As she was sleeping, she swears she opened her eyes and was awake through all of this. She says she opened her eyes and could see herself as if looking in a mirror. She stuck her tongue out at herself, the image did the same. She moved her left hand and touched palm to palm with the image. She says she closed her eyes, when she opened them, the image was gone.

Next she started to hear country music playing. She looked up at the ceiling to see her gray, New Balance sport shoes dancing on across the ceiling. Mom loves shoes, and has a ton of them. She said the next thing she knew, her closet door flew open and her shoes, all of them, proceeded to dance up the wall to join her  sport shoes doing their thing on the ceiling. She laid down on the bed to watch the show.

She states the next thing she knew, her alarm clock went off. When she went to get out of bed, her shoes were all over her bedroom floor. At that moment, she heard a man laughing in her bedroom door, she looked up to see her father in her doorway.

His comment to her was she never could keep her room clean. He closed the door. She chased after him, at the moment her foot hit the floor, she was wide awake. She opened her door and he, of course was gone…….

Gotta love her………..

 

Yearly MRI √

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With Cowden’s Syndrome, you have to follow a set schedule to keep up with which screening is next. Then, of course, if there is a problem, the screening and recheck can run together. 

Today, I went for my yearly MRI, about the brain tumor on Monday at 1pm. This is where screenings can run together.

I had a breast issue last year that caused them to redo my mammogram, which has led to other mammograms, ultrasounds and now, 6 months later, a biopsy. Scheduled Monday, one hour before my neurosurgeon appointment. At least they are within walking distance of each other.

The sad thing is, my next yearly mammogram is due in April. But I guess my mammograms are about to put a kink in my set schedule. In my schedule thus far, gynecologist, endocrinologist, neurosurgeon, neurologist, neuro-oncologist, gastroenterologist, dentist, urologist, dermatologist, psychiatrist, counselor, genetics counselor, general practitioner, breast specialist, otolaryngologist, cardiologist, massage therapist, and acupuncturist. 

Now, that I have boogered my knee up, I have to add an orthopedic doctor in there. I am sure surgery is in the future for that, which will add physical therapy into the mix.If surgery is in the mix for the next few months, I need to see about getting the lump taken out of my right wrist while they are at it.

The fancy MRI on my left knee next Thursday, then see the doctor Friday. The endocrinologist is in the mix next week somewhere. I’m getting tired thinking about next week. 

Barry is my riding buddy. I’d be lost without him. I can’t drive long distances, so he gets me to the long distance rides. I’m tired of being organized. I never considered myself organized, but with all of this, you have to be. All of the above is just me, included in my mix are Barry’s appointments, as well as several I take mom to. I’m not making light of their appointments, mine takes up more calendar space than their’s does. We should hire a good personal assistant……

Double Whammy…you have to love doctors!!!

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While at a checkup with the Allergist today, I received a phone call from the genetics counselor assigned to me. She had received the results of my genetics test. I apparently do have the rare genetic disorder all the doctors have been avoiding discussing with me. So I am one in 250,000 people in the United States blessed with this genetic nightmare.

Even though one sweet doctor had taken it upon himself to tell me that I could be considered diagnosed with the disease because of my medical history; I felt like a rock had been dropped in my lap. Reality smacked me in the face and now I had to discuss this with my family and get them to be tested. I hate being like this.

I would never wish this on my worst enemy, I certainly do not need to worry about my sisters, nieces and nephews having to deal with this. What about their children? This is just so much to deal with. I was coping fine, until I knew for sure. Now…I need to pray on this…

 

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