Tag Archives: what next?

Yearly MRI √

Posted on by

With Cowden’s Syndrome, you have to follow a set schedule to keep up with which screening is next. Then, of course, if there is a problem, the screening and recheck can run together. 

Today, I went for my yearly MRI, about the brain tumor on Monday at 1pm. This is where screenings can run together.

I had a breast issue last year that caused them to redo my mammogram, which has led to other mammograms, ultrasounds and now, 6 months later, a biopsy. Scheduled Monday, one hour before my neurosurgeon appointment. At least they are within walking distance of each other.

The sad thing is, my next yearly mammogram is due in April. But I guess my mammograms are about to put a kink in my set schedule. In my schedule thus far, gynecologist, endocrinologist, neurosurgeon, neurologist, neuro-oncologist, gastroenterologist, dentist, urologist, dermatologist, psychiatrist, counselor, genetics counselor, general practitioner, breast specialist, otolaryngologist, cardiologist, massage therapist, and acupuncturist. 

Now, that I have boogered my knee up, I have to add an orthopedic doctor in there. I am sure surgery is in the future for that, which will add physical therapy into the mix.If surgery is in the mix for the next few months, I need to see about getting the lump taken out of my right wrist while they are at it.

The fancy MRI on my left knee next Thursday, then see the doctor Friday. The endocrinologist is in the mix next week somewhere. I’m getting tired thinking about next week. 

Barry is my riding buddy. I’d be lost without him. I can’t drive long distances, so he gets me to the long distance rides. I’m tired of being organized. I never considered myself organized, but with all of this, you have to be. All of the above is just me, included in my mix are Barry’s appointments, as well as several I take mom to. I’m not making light of their appointments, mine takes up more calendar space than their’s does. We should hire a good personal assistant……

Double Whammy…you have to love doctors!!!

Posted on by

While at a checkup with the Allergist today, I received a phone call from the genetics counselor assigned to me. She had received the results of my genetics test. I apparently do have the rare genetic disorder all the doctors have been avoiding discussing with me. So I am one in 250,000 people in the United States blessed with this genetic nightmare.

Even though one sweet doctor had taken it upon himself to tell me that I could be considered diagnosed with the disease because of my medical history; I felt like a rock had been dropped in my lap. Reality smacked me in the face and now I had to discuss this with my family and get them to be tested. I hate being like this.

I would never wish this on my worst enemy, I certainly do not need to worry about my sisters, nieces and nephews having to deal with this. What about their children? This is just so much to deal with. I was coping fine, until I knew for sure. Now…I need to pray on this…

 

Related articles

 

Yearly Thyroid Ultasound: HAPPY DANCE!!!

Posted on by

I got the all clear after my ultrasound today. They thought I had an active lymph node in my neck, but I have been given a clean bill of health any thyroid cancer or lymph node issues for the moment. A big thank you to the good Lord above and to everyone on here for the courage and support you bring out in me daily! THANK YOU!!!!!!   🙂 

HAPPY DANCE! HAPPY DANCE!

Daily Prompt: Shoulda Woulda Coulda

Posted on by

          mermaidbrunetteTell us about something you know you should do . . . but don’t.

Honestly, I do not where to go with this one, but I think I’ll stick with an issue that has come up a few times today.

I hate to fold and put away clothes. Before I lost partial use of my left hand, I hated doing the laundry. I can get them in the washer, just fine. But when it comes to folding, hanging up and putting them away, I lose it. I’m useless.

These days, it is hard to do these things one-handed. I have to look at activities from a stand point of it being beneficial to me or whether it will drain my energy for the day.

In my eyes, I’d rather scrub the nastiest toilet on earth and not deal with the laundry. That is a really sad statement. Instead of dealing with nice, fresh clean things, I’d rather take care of one of the nastiest things in a home.

For the moment, I think I will continue to let mom handle things. She doesn’t like how I do it anyhow. She enjoys shrinking my clothes to make herself a new wardrobe. If I helped with the laundry, I might not get to shop as much! I love to shop, so no laundry for me, unless necessary.

Besides, I’d hate to give Barry the shock of his life!

graphics-laundry-basket-941622

My brilliant Doctor, part 2

Posted on by

MM900295156

I must tell you about yesterday at the beautiful Emory Campass in Decatur, Georgia. The neurologist report was actually good. He has finally learned that I am sensitive to medication and did not go off on a wild tangent trying different drugs.

MM900295159

I was actually so happy. It was the first time since 2010 that I received a good report from this guy. I could have kissed then cute little old man. Just adorable. 

0060-0502-1519-3736

Then, came our second appointment for the day and those words no woman should ever have to hear. There are 2 areas showing on the right side. We are unsure of what one is, but the other appears to be cancer. We need to do a need to do needle biopsies as soon as possible to get some answers.

MM900283639

We added this to all the other treatments I have scheduled through the next month. I only have a few scheduled: close neck ultrasound, kidney workup and ultrasound, MRI of the brain, MRI of left knee with possible surgery,  MRI of breasts, and now needle biopsies in right breast. I have a busy month of probing and proding.

clip-art-sleeping-505993

Would anyone like to change places?

Daily Prompt: All About Me! (US)

Posted on by

Explain why you chose your blog’s title and what it means to you.

Our Blog’s T.le: Two Rights Attempting to Make a Left

Barry and I came up with the title together. It is based on our health issues over the last few years. In 2009, I was discovered to have a brain tumor (gangliocytoma) in my left cerebellum. After a long period, we were told that the brain tumor was just a symptom of a rare genetic disease called Cowden’s Syndrome.

Needless to say we were dumbfounded. I had surgery in 2009 to reduce the tumor, but it was impossible to remove it in its entirety. So, life goes on.

Things were going along great, no magor problems, then December 11, 2012 came around. It started as a normal day, we were assisting the resident’s with morning care. I heard a resident calling for help.

To my shock, it was not for him. It was my sweet husband. He was in the process of having a stroke. I called for an ambulance and off to the hospital we went. Although Barry had a massive right territory MCA, he looked perfectly fine. It was hard to believe a week earlier, they had asked me to call all the family in because they did not believe he would make it through the night.

Months later,  a rehab counselor recommended, that we either start a journal or a blog. With the two of us being computer oriented, we chose to do a blog. Oddly enough, the title is related to both of our injuries. We were attempting to get something in the stove. Neither of us could do it with both hands, so he got one end with his right hand and I got the other. It came to us about the same time, that we were two right hands trying to use our lefts.

MM900234673

So we named the blog:

Two rights attempting to make a left!

Nothing fancy, just the two us working together to keep a sense of normalcy.

My Brilliant Doctor

Posted on by

I’m a little frustrated. Heading to the Neurologist office in am. He is the one that likes to experiment with different drugs to control my symptoms. I recently had to come off a drug he had prescribed, so I’m curious to see what he wants to replace it with. I’m not ready for permanent Zombie-land, but I do need some relief. We’ll see, I need to quit stressing over what he wants to do.

After our visit with him, I’ll be headed to the boobie department for a test and see the (if the test says I need to). I’m hoping we can squash the breast cancer issue tomorrow afternoon. All this hurry up and wait junk is driving me nutty. I need to give it to God and stop worrying.

I hate falling!

Posted on by

Hand on Cane

I’ve done it again. This time I tangled with the throw rug in the master bathroom, but me thinks I’ve done my left knee in, again.

Just over a year ago, I tore the meniscus cartilage in my knee. This time, I couldn’t put weight on the knee and it was swollen down into my foot. The doctor said nothing broken, she wanted to check because of the swelling. She gave me a topical ointment for pain, which is some good stuff; sent me home to grease it up and stay off it! She also did a cortisone shot…worked….ehh???

She said when I return; if it is no better, she’ll get a joint MRI (where they inject die in the knee) to see what the damage is. If needed, we’ll talk surgery then. 

I truly prefer not to hear those words, but I have to be able to walk. I asked the doctor; if they have to operate, can I get a 2 for 1 deal? I’ve dealt with my solid tumor in my right wrist, the doctor has said it will need to come out. I figure, while I’m asleep, let them fix both. Save me one episode of general anesthesia. We’ll see. I’m ready to NOT be in pain!

Daily Prompt: Call Me, Maybe

Posted on by

Describe your relationship with your phone. Is it your lifeline, a buzzing nuisance, or something in between?

When cell phones first came out, I hated the things. They were big, clunky and more expensive than they were worth.

Next, I landed a job that required I be on-call 24/7. To start they provided pagers (some of you younger people may not know what that is). They were a bigger nuisance, because of stopping at pay phones and keeping up with change. I hate change!

Cell phones were still toooooooo expensive. 

Over the years, as technology improved cell phones became less expensive and so much smaller! But, they were still expensive. One month, my stepson’s bill alone was over $1000. He’s lucky to still be with us.

Now that prices have stabilized and phones are more convenient. I  believe I only like my phone because it is a necessity. Being disabled, I feel more comfortable, being out alone. If my car breaks down, I can call for help. There’s a GPS on it, if I get lost and tons of games to keep me busy if any of the above happens.

I guess I will go with something in-between. I’d rather not have to keep up with it, but there are times when I would totally consider the thing a buzzing nuisance.

I never want to be put in the class of people who considers a cell-phone a life line. Will our future generations be able to talk to one another? Or write a letter, note or list if they need to? Consider me old-school or just plain old! I do not care, the convenience aspect of a cell-phone is marvelous. Everything else can be considered a buzzing nuisance!