Category Archives: Learning Patience
dealing with issues
Six-word Saturday
I guess I was ready!
I feel like the only thing I have accomplished today is a headache and a serious need for something to eat other than crackers with a side of room-temp water.
A lady across from us was a mess. It broke my heart. Her doctor had just been in and told her some bad news. So we watched and listened as she cried and called her relatives to let them know. It was so sad. The nurses could have pulled the curtain for to allow for privacy.
Barry is happy as a lark. TV all to himself and a chair to snooze in, although it did not compare to his recliner. We have nine minutes left on this infusion and we are headed home. Woohoo! I miss my Maggie. I miss home. Being here for the reasons I am here, has made me realize how much I appreciate being home.
I can’t wait to get away from all these medicinal odors and get into my cushy chair at home. I have a lot of email to return and phone calls to make.
We have decided when we make our first billion or two, we’ll buy new chairs for the Infusion Center. The sad thing is the number of patients that have gone through those chairs to wear them out. Cancer effects more lives than anyone realizes.
Am I ready?
Such a simple question for process about to begin. God is watching over me, Barry will be by my side, Emory Winship Hospital will be providing the care and mom will be home waiting to cook a nice healthy meal. I’m hoping my stomach will let me eat. I do not need to worry about daddy, because Kristie is in control. I feel sorry for the nurse assigned to Pop yesterday.
My clothes are laid out and ready to go. My tablet will be charged, allowing me access to books, games, the Bible and whatever else the internet may provide as entertainment while waiting for the infusion to complete. I can do more research on chemotherapy and the type cancer I have. I can write a step by step post on what chemo is like. I would not want to bore you to death.
I have to repeat this process every three weeks for four doses. Then we swich to radiation. Radiation is scheduled to be daily for a certain period of time. I’ll find that out when the time comes.
My cousin has given the inside track on whst to ask for from the goof doctors. She let me know what worked for her and what she has heard from other people. I believe Barry and I are as ready as we can be.
There is a thunderstorm brewing here. We can hardly keep up with the grass. We’ve had so much rain, the flowers are h8rgeous and yhe grass is growing like crazy. I’m going to hit the sack. Hope everyone has a beautiful day tomorrow!
Post Surgical Cast
Writing through cancer: For the Week of June 23, 2013: How Do You Want to Be Remembered?
Of late, I’m going to be known as the aunt that was turned into a witch after brain surgery. I want to see what I can do to change that. Everyone has so much to do that no one has time to remember what family is and how to treat each other. Everyone also needs to remember that they are not the only ones with full lives. We all have busy, full lives.
My family needs to realize that I will never be the person I used to be before and I cannot be forced backward into that person. My body is not the same and avoiding me is not the way to handle things. Barry is not the same either. We are both different and having mom in the house does not mean AVOID AVOID AVOID. WE ARE PART OF THE FAMILY and always will be. We may just be aunts and uncles, it doesn’t mean put us out of the family.
We would love to be known as a loving couple that welcomed their family with open arms whenever needed. The smart uncle and creative aunt that would fo anything for anyone. Not be isolated and un-notified of family gatherings.
Brain injuries, strokes and dementia cause changes to the brain, as well as the brain chemistry. All the above can cause changes in behavior. They can be managed by medications, but will always be there. This does not mean a person is CRAZY!
Barry and I don’t want to be remembered as the crazy Aunt and Uncle that took care of Me-maw in her later days. We’d like to be known as the full of life couple that participates in everything with the family and greatly enjoyed every minute. We want to be known as abfamily-oriented couple.
We only need to know when something is happening. Telephones work two ways these days. I plan to do better with communication. I’m just hoping pther people reading this do the same. It only takes a second to make a phone call.
Lunch at Applebees: A New Barry Moment
Barry and I had lunch at the local Applebees. I guess we eat there too often, they know us by name and remember our usuals.
We tried out there new summer menu, but we stayed on the lighter side. Gave me a few ideas to try at home. We’ll see.
The waitress brought our check out. Barry gave her what was needed to handle the bill. As he gave it to her for processing, he said, “If that card doesn’t work, I have a doctor’s excuse that allows me to wash dishes.”
When she returned after processing the payment, she stated, “You can do dishes if you want, but the card went through.”
I quickly told her, “I do not know him, he offered me lunch and I said sure.”
She said, “Hey, you got a free lunch” and sped off back to work.
Barry can be such a clown. I love him for trying to lighten my mood. We have a huge day ahead of us and he knows I stressing a little. He is just a sweetheart.
Ms.Mater, the first resident I assessed for admission to a Personal Care Home
As I walked down the hallway, toward Ms. Mater’s room, the air was filled with laughter. I knocked on the door four times before someone heard me. I was instructed to “come in”. I looked around the room as I walked in. The room was full of resident’s of the home, as well as employees. Ms. Mater was the center of attention. I was about to discover that she loved every minute.
Ms. Mater had suffered a debilatating stroke and upon discharge from rehabilitation, she was scheduled to move into our building. All of this was a preliminary arrangement, based on the results of the assessment I was about to go through with her. Procedure, procedure, procedure…….
I introduced myself and asked a staffmember to assist with the other resident’s; I needed Ms. Mater to myself to complete the assessment.
Once alone with my new friend, she started cracking jokes. This sweet, little, gray-haired lady was hilarious! She had me about to wet myself within seconds. Within minutes we were fast friends. A friendship that continues today. Even though she can’t hear me, we speak several times monthly and we visit when in the area. Neither of us gets out like we used to, but we enjoy life.
Ms. Mater elegantly answered my questions and performed the tasks I asked of her, without complaint and to the best of her current abilities. She made no excuses for her defeciencies, she joked them off. As we worked, she told me stories of her childhood. She claimed to have grown up being called “The Ugly Duckling”
I just could not see it, she had such a timeless beauty. She said she grew up on her farm, the oldest of three girls. She was born with a headful of flaming red curls and as each of her sisters were born, they had Strawberry blonde curls. She said she was furious, until they grew up and she was prettier than both of them. From what I heard, she did not mind sharing that fact at all.
The only clue she was ever a red-head, was the red tint in her silver hair. It almost appeared to be blonde or light brown. She never left her room without being immaculately dressed, with makeup and lipstick perfect.
She had a set weekly appointment with beautician. I was sworn to secrecy over how she keeps her hair in place at night. It is actually a little funny. She doesn’t know it, but I have a photo of her sleeping in her get-up.
Ms. Mater was crazy about my now husband. She repeatedly told me that if she were twenty years younger, she’d take Barry away from me. I wouldn’t put it past her to at least try. Ms. Mater always said she loved me due to my “smart-…” attitude. I’d just say “back at you”and keep going.
When I need to cheer myself or need a little giggle, I think of Ms. Mater. It always makes me smile. I can see her sitting in my office chair, telling everything I need to get done “around here”. Cheers me right up! I’ll usually give her a call later that evening. I miss having her around!
Tomorrow
The doctor has decided that my left knee needs replacing. At the moment my left leg is swollen from the ankle up to my hip. I look like I have a cankle. Since my brain tumor surgery, I haven’t been light on my feet.
The falls I have taken, since brain surgery really screwed up my balance, ha done a job on my left knee. I’ve been incredibly lucky and only ended up in the emergency room one time. I had forgotten how bad getting stitches hurts! But all the falling has taken care of any useful cartilage in my knee.
With the breast cancer, I’m still waiting to hear which treatments I will be getting. So, I am sure knee surgery is going to have to wait until after my treatments. I’m making a list of questions, for both doctors, I need to add that to both list.
This is crazy, I’m putting my health issues in a que to be handled in order of importance. Cowden Syndrome strikes again!
Wednesday afternoon, I am having a cyst removed from my right wrist. I’ve had wear a cast a few times when the cyst was enlarged. Apparently to get it to stop, it needs removing. My right hand is my only good hand. I need to keep it in shape as long as possible. I’m not looking forward to a cast or brace again, but I’m a tough cookie. I can handle it! Wish me luck!
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Personal Prayer Request
I believe in the power of prayer. I have seen too many things in my lifetime that proves there is. On this date, I am asking that everyone pray for my father, Lee Van Hayes. He received some extremely bad news from his doctor today. I think we were all expecting it, even dad, but hearing those words are not easy. WordPress Blogs are full of love and kindness, with a few freaky things added in. I’d love it if I could take my computer to Pop and show him all the well wishes received from my fellow bloggers.
WordPress reaches tons of people. It would be such a wondrous thing to get at least half the people, in our blogosphere, saying a little prayer for one special man. I know he is not special to everyone, but he is to my family and his friends. My dad doesn’t meet strangers, he likes everyone. He is just the biggest sweetheart on earth! My family, as well as Barry and I would greatly appreciate any small wish of good health or just a hope you are feeling better soon.
We are to the point that prayer is the answer. Dad is in God‘s hands and he will take care of him. Thank you in advance for anything you say!
If my comments section is not working yet, please use the email available for my blog: geegeebear3@gmail.com.
Have a bless day!
Barry and Jill
and the family of LeeVan Hayes
English: The logo of the blogging software WordPress. Deutsch: WordPress Logo 中文: WordPress Logo (Photo credit: Wikipedia)
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