Category Archives: weather

Knee Business! Happy Dance!!!!! woooohooo……

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I love seeing a doctor and leaving with a smile on my face. With my fall, I  did not cause any permanent damage, because there isn’t any cartilage there to tear.

She has an idea to try before talking about major surgery, so we’ll give that a shot and talk new knee when we have to. I’m game. I’ll rather get an injection under the patella, than go under the knife.

Again, the good Lord has watched over me and showed me flipping out about this is not always the answer. My Faith gets stronger daily. It is really hard not to stress over your health, when you have so many things to stress over. Barry and I are learning to let God take the lead on health issues. The better we get at it, we are honestly feeling less stress over things.

It has gotten to the point that I actually leave my cane or walker in the car, because I don’t want to feel like a little old woman or have anyone laughing at me. Pure silliness. I’m learning to leave my pride in the car, not my walker.

I just got a new walker. Barry says he’ll pimp it out for me if I want him to. A few things might be cute, but I wouldn’t want him to go overboard. The kids will love it! 

I got permission to get my exercise program going again. I’m hoping to start in the morning. I’ve missed the gym.

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Our 200th post, There is a link to the page, but I also put the post below to avoid confusion

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 Click the link for our 200th post:

https://gegebearbear.wordpress.com/200th-post-can-you-believe-it/

The 200th post is below, but I’m gonna leave the page up too. I have removed any mention of a certain person who shall remain nameless. Enough said.

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We thought this post required something special. I find it difficult to believe we’ve been blogging since September 8, 2012! We have been on a journey since that date, but we are holding on strong and closer than ever.

This blog wasn’t our idea, but we have thoroughly enjoyed compiling information for post together. It truly has been therapeutic for both of us. Who would have thought that a counselor, specializing in neurological issues, would know what they were talking about? Maybe that was what we were paying them for? At least our insurance was…..

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We have done so well. Blogging has brought new friends into our lives and seen a few leave. The good seeds continue to take root as the friendships flourish. Others are like annual flowers, they are incredible at first then the heat of the sun fades their colors. Then you pull the annuals and throw them out to put new color in your garden. It is a shame all flowers and friendships cannot be timeless.  Enough said on the matter.

Barry and I continue to enjoy each blogger we have met on WordPress and stay sorrowful over those that did not work out. We have met some incredible people, who have taught us both a lot. Papazilla actually got me to debate a topic in writing, which is something I avoid like. I do not speak well, so there are certain things I do not freely take part in.

I have a rare genetic disorder. I felt so alone dealing with my illness at times, then my friends and family remind me I am not alone. The internet is an amazing tool to use to connect with people you may not meet normally. Barry is wonderful and my best choice to discuss my disease with. Thanks to everyone for being wonderful!

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BrainTumorThursday on Twitter has become a weekly part of my life. When I can take part, I do. When I can’t, I make sure one of my posts, about a brain tumor issue, is on the page. There is such a huge need for funding for research. Brain Tumors kill too many people yearly. I’m including a link to a national foundation for when you would like more information.

Twitter link:

http://paper.li/TumorWarrior/1343039984

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http://www.abta.org/about-us/

http://www.sbtf.org/home.html

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Two groups of hardworking people working to stop the pain of brain tumors. Please check them out. Barry and I take part regularly in the SBTF run/walk to raise money in Atlanta. We enjoy the get together. We also take part in a monthly support group for brain tumor patients. Very helpful group, when figuring life out after a brain tumor.

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http://www.emoryhealthcare.org

I’m including the website for the support group below, check them out. Very enjoyable group.

http://www.neurosurgery.emory.edu/BTSG/index.htm

Tons of extremely hardworking people, check them out!

Check out #BrainTumorThursday on Twitter. Just do a search. Do not forget the hash tag.

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Other health issues in constant need of funding are mini-strokes and strokes. As a nurse, I know what to look for and what they look like when occurring. Many people have health issues happen today and are clueless. They have no idea what is happening or whether to consider it an emergency or not. It is truly sad in my eyes that we are not more educated about our bodies and how we should respond to them when they scream at you,

 ‘HEY, I NEED ATTENTION!’

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I’m so glad I was home with Barry when his stroke occurred. He’s an extremely healthy, highly intelligent man. He did not have a clue or remember anything past us getting out of bed that morning. If he had been home alone, he would not be with us at the moment. God is good and decided he wasn’t finished with Barry. He helped me get the right people on to Barry, then the doctors and hospitals took over. New technology saved Barry’s life. Emory University Hospital had Barry in the procedure room before I made it to the hospital. I thank the Good Lord above for guiding the doctors in the proper care Barry needed. Although, his stroke continued once the clot was out of the picture, Barry is alive and thriving.

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http://www.heart.org/HEARTORG/#mainContent

http://www.strokeassociation.org/STROKEORG/

http://www.stroke.org/site/PageNavigator/HOME

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Since starting our blog, our lives are finally calming down. My illness is settling into a routine of check-ups and Barry is getting stronger each day. Mom is even settling into our routine(Surprise, surprise)

Barry and I are about to embark on a new voyage in our lives. When he retires, we will have time to run around and do what we want. Travel; be lazy;  work in the yard; go to church; visit family; who knows, maybe we will see a movie at the theater…..I have a huge list of ideas, I just have to talk Barry into it. Barry will have a tough time adjusting to staying home. He has driven downtown(Atlanta) to work for over 30 years, sleeping past 6am is already a challenge for him on the weekends. After 9 years of marriage, I can say one thing about Barry L. Baynes. The sweet man despises change!

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If you do not know CPR, LEARN IT! You may need it some day!

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Round Four: Thyroid Scan Results/ Biopsy results

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At 11:30am, we will be headed to the next appointment for the week. I’ll get my official thyroid scan results today. It’s in God‘s Hands as usual, but I am feeling rather positive today. The Neurosurgeon‘s visit has really lifted my spirits. Hopefully, Dr. M. will deliver similar news. I also received a message from the breast center, telling me she had good news about my biopsy. I left a message for her, so hopefully I will hear from her soon.

Have a good afternoon everyone. It was 60° yesterday and in the 30’s today with possible snow on Saturday. You have got to love the south. Daffodil’s are blooming already. Spring is coming. I can’t wait!

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Mom is dreaming again….Diggin’ Taters..

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This is a strange one, because mom used to tell us this story when we asked for a good scare. She was a live participant in the story this time. 

Mom grew up on a farm. She, her brothers and sisters, did a lot of the gardening to provide food for the family. To put it in mom’s words, she is not a stranger to ‘diggin taters’. 

Mom is the oldest of eleven children. So when she had the younger children, she was in charge. In her dream, mom and three of the older kids are in the potato patch digging potatoes for dinner.

To set the stage properly, it was a windy day. It felt like a storm was blowing up. The wind was whistling through the trees,  sounding like someone trying to talk to you. The air was thick and heavy, reminding everyone summer storms can be dangerous  and you do not want to get caught out in the field in one. Mom was trying to rush everyone, so they could get back to the house without getting caught in the weather. 

My Aunt Jo said to mom, ‘did you hear that?’ Mom told her she didn’t hear anything and keep working. Then, my other Aunt Bib asked mom the same question. She yelled at the two of them to quit playing games and get back to work.

My Uncle Owen decided to keep what he had heard to himself, because he didn’t want my mother yelling at him. Truth be told, it sounded like the wind was talking to them and he knew mom had heard exactly what the other three had.

There appeared to be a voice in the wind saying;

‘Who has my big toe? I want my big toe!’

The four kids kept working, wanting to make grandma happy with the amount of potatoes they brought back. The wind continued to whistle and all four kids were starting to hear the voice.

Who has my big toe? I want my big toe!’

By this time, they had enough potatoes for a couple of days, so they gathered their tools and tater sack and headed back to the house. No one said a word to anyone about the strange voice.

That night in bed, Aunt Jo and Uncle Owen woke mom up to tell her they were hearing the voice in the house. The difference was, it was followed by footsteps. She quickly told them it was their imagination and to get back to bed.

She tried to get back to sleep, but discovered sleep eluded her.

She heard someone say, ‘Who has my big toe?’

All she could do was think about what she had just heard.  She also heard every noise, bump and bang the house made in the night.  

The next day, mom and the other kids were outside playing when they heard Grandma Frank scream. They went running into the kitchen to see what the problem was.

Grandma Frank had dumped the bag of taters in the sink to clean them up and prepare them for storage. She was standing near the sink shaking from head to toe and pointing at the sink. She was mumbling incoherently. Mom went to the sink and peered inside. Laying there, among the potatoes they had dug up yesterday, was a big toe!

Monday Jitters

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Give, it to God, Jill.  Don’t let all of these crazy things worry you. Take one day at a time and one appointment at a time. That is all you can do, do not over think what is going on next week and let God work in your life. He is the one with the plan for your life. Let him work it. Be strong for yourself, Barry and you family. It is inside of you. Be strong. No matter what the outcome, be strong. She your strength in your actions. Barry needs to know you are OK and tough. Be strong for him. Be encouraging for Barry. He needs to see your strength.

Please forgive my nervous outbreak. A lot going on next week that I am not sure I’m prepared to deal with. But I’m in God’s hands and he’ll take care of me. I’m more worried about Barry than myself. Hospitals make him nervous, especially Emory, since the stroke. I’m sure it will all work out. Monday is the key. Just take it one day at a time. 

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My eyes playing tricks on me…..just an example….please forgive me Pastor

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When leaving church services a few days ago, my eyes were acting strange all day. Barry and I walked out the front door toward the parking lot. Our weather, has been a huge range from sunny to rainy to windy to stormy. Well, this night, it was burrrrrrr cold and windy.

I looked off to the right of the parking lot because something caught my eye. I turned and asked Barry if there a fire toward the Pastor’s house?

He started laughing and informed me that what I was seeing was the wind blowing the stop sign, with the parking lot lights reflected on the stop sign. My eyes just made it seem further away than it was. I was looking in the direction of the Pastor’s house.

The reason there may be a fire toward the Pastor’s house is an entirely different story, I don’t feel it is proper to share without permission. I’ll just tell you, it is a good one! He has video to prove it.

http://deriklawrence.wordpress.com

Yearly MRI √

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With Cowden’s Syndrome, you have to follow a set schedule to keep up with which screening is next. Then, of course, if there is a problem, the screening and recheck can run together. 

Today, I went for my yearly MRI, about the brain tumor on Monday at 1pm. This is where screenings can run together.

I had a breast issue last year that caused them to redo my mammogram, which has led to other mammograms, ultrasounds and now, 6 months later, a biopsy. Scheduled Monday, one hour before my neurosurgeon appointment. At least they are within walking distance of each other.

The sad thing is, my next yearly mammogram is due in April. But I guess my mammograms are about to put a kink in my set schedule. In my schedule thus far, gynecologist, endocrinologist, neurosurgeon, neurologist, neuro-oncologist, gastroenterologist, dentist, urologist, dermatologist, psychiatrist, counselor, genetics counselor, general practitioner, breast specialist, otolaryngologist, cardiologist, massage therapist, and acupuncturist. 

Now, that I have boogered my knee up, I have to add an orthopedic doctor in there. I am sure surgery is in the future for that, which will add physical therapy into the mix.If surgery is in the mix for the next few months, I need to see about getting the lump taken out of my right wrist while they are at it.

The fancy MRI on my left knee next Thursday, then see the doctor Friday. The endocrinologist is in the mix next week somewhere. I’m getting tired thinking about next week. 

Barry is my riding buddy. I’d be lost without him. I can’t drive long distances, so he gets me to the long distance rides. I’m tired of being organized. I never considered myself organized, but with all of this, you have to be. All of the above is just me, included in my mix are Barry’s appointments, as well as several I take mom to. I’m not making light of their appointments, mine takes up more calendar space than their’s does. We should hire a good personal assistant……

Daily Prompt: A Plot of Earth

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You’re given a plot of land and have the financial resources to do what you please. What’s the plan?

We’ve done the big house thing, so to start…We’d have a modest handicapped accessible home-built, near the back of the property. Single level of course, but with all the technology available to make life easy around the house for a disabled person. One room would be set aside for a gym. I need a place to work out, instead of my dining room. There has to be huge porches with swings across the front and back of the house. One end of each porch would be screened in. I love to sit and enjoy the outdoor sounds.

Second, we’d have a small guest house built behind our house for my mom. She can design and pick out what she wants. She needs to include a guest room for company.

Next would come the raised garden, close to the house with benches everywhere. It would have a rose-covered arbor at the entrance with every plant possible to attract butterflies and birds by the dozen.

A covered patio with a table or other area to relax and get out of the rain. Somewhere close by, there would be a small garden shed to store all my tools and other essentials. I’d have to have some form of water feature in the garden. It would be great to have a fountain in the center of the garden. The birds and butterflies would love that!

To one side of the house would be Barry‘s garage sanctuary. He can work on cars, build things and do whatever he wants in his man cave. That would be his place to design and setup.

I can’t forget about our treasured pets. We’d have to have an area of the yard fenced in and a state of the art doggie-door for Miss Maggie to go in and out on her own. The door needs to lock the minute Mags is back in the house.

Then there is Shotgun, our Japanese Fighting Fish. He will need a larger tank somewhere near the kitchen. We can decorate it like the bottom of the ocean, but I need to be able to handle it to clean and change the water. Shotgun loves hiding in the roots of my plant in the aquarium.

The plot of earth would be full of big shade trees and a long drive way. I’d need to ride by bicycle to the mailbox. Along with the garden, the house would be surrounded by flowers and shrubs. Something would be blooming year round.

Daily Prompt: Call Me, Maybe

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Describe your relationship with your phone. Is it your lifeline, a buzzing nuisance, or something in between?

When cell phones first came out, I hated the things. They were big, clunky and more expensive than they were worth.

Next, I landed a job that required I be on-call 24/7. To start they provided pagers (some of you younger people may not know what that is). They were a bigger nuisance, because of stopping at pay phones and keeping up with change. I hate change!

Cell phones were still toooooooo expensive. 

Over the years, as technology improved cell phones became less expensive and so much smaller! But, they were still expensive. One month, my stepson’s bill alone was over $1000. He’s lucky to still be with us.

Now that prices have stabilized and phones are more convenient. I  believe I only like my phone because it is a necessity. Being disabled, I feel more comfortable, being out alone. If my car breaks down, I can call for help. There’s a GPS on it, if I get lost and tons of games to keep me busy if any of the above happens.

I guess I will go with something in-between. I’d rather not have to keep up with it, but there are times when I would totally consider the thing a buzzing nuisance.

I never want to be put in the class of people who considers a cell-phone a life line. Will our future generations be able to talk to one another? Or write a letter, note or list if they need to? Consider me old-school or just plain old! I do not care, the convenience aspect of a cell-phone is marvelous. Everything else can be considered a buzzing nuisance!

Choosing a retirement car

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When you retire, do you go for creature comforts or do you get the car you always wanted, but didn’t want to spend the money? These days,  what is my scooter carrier gonna do to the look of a hot rod?

Better yet, what are Barry and I gonna look like getting out of a hot rod? Can I get out of a hot rod? What is an old woman going wear in a hot rod. Barry has not wanted to spend the money on the car, but he has plenty of gear to wear. Trust me! He has been hot rod ready for several years.

I do not want to be the reason he is not getting the car he always wanted. If. It comes down to it, he can get a lift and swivel put on my seat.

Barry driving, not his hot-rod!

Barry driving, not his hot-rod!