Tag Archives: Breast cancer

Writing through Cancer for week of June 2, 2013: Hope is a thing with feathers!

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This is a continuation of our post earlier this week:

That sweet little boy at the Birthday Party, looking and hoping he could find more presents hidden within the gift wrap piled on the floor. He was frantically searching; he was positive, he would find one more present. he was showing he had total faith in his situation. His thoughts alive with the feeling of hope.  He just knew he would find one more present. So adorable searching.

Before we had wrapping paper all over the house, we got a bag and played gift wrap basketball. Making a game out of the cleanup, let him see there were no more presents. he was able to focus on the gifts he received and the house full of people who came to celebrate with him and his sister.

Hope covers many aspects of  our lives.Dealing with a serious illness brings hope into your life in several ways. you hope the illness will not get bad, you hope to live through whatever illness you are going through, you hope your families will be there for you and not change their minds as you get worse, you hope the people you have called friends for years will be there when you need them.

There is so much hope involved in illnesses. It is hard to deal with hope, when you are fighting so hard to stay healthy and you find yourself surrounded by people you cannot count on. You need to remember that God is always there. Giving your troubles and burdens to God must be done with total faith, then we can continue our walk in life with the assurance that when trouble comes; we know God is there and that whatever the new trouble is,God is never surprised, for He is with you.

Therefore will not we fear, though the earth be removed, and though the mountains be carried into the middle of the sea. If your faith is not strong, we lose hope and start looking for a quick fix.

Psalm 46:1-God is our refuge and strength, a very present help in trouble

Psalm 31:24-Be of good courage, and he shall strengthen your heart, all ye that hope in the Lord

Psalm 33:18-Behold, the eye of the Lord is upon them that fear him, upon them that hope in his mercy;

Psalm 33:22-Let thy mercy, O Lord, be upon us, according as we hope in thee.

Psalm 38:15-For in thee, O Lord, do I hope: thou wilt hear, O Lord my God.

                 King James Version (KJV)     

It is that faith,  is our Hope and knowledge that God knows when we are on this rocky bumpy road, and holding that faith is when God puts his loving arms around us and smooths out the road ahead.

Though we may never know the why, but really do we need to know, because this is where we gain Wisdom as we talk to God and, no matter what comes our way, you know God will see you through it.

Through my illness, I have struggled with worry, stress, and anything else that made me worry. It wasn’t until I started praying for hope, mercy and understanding that I was able to but my health in God’s hands. I recently went through a breast cancer ordeal that I had no worries about I knew it would be ok. God was doing the hard work for me.

I am currently struggling with another issue. I am handing it over to the good Lord tonight hoping he can lead me in the right direction with re-motivating my partner in crime, I’m wearing my husband out. Barry suffered a stroke a few years ago and is doing wonderful, but he’s worn out. I need to see what I can do to give him a break. We both need a break, but that will have to wait a little longer. I do not know what I would do without him.

One day at a time!

For the week of May 26, 2013, Writing through Cancer

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Reclaim the sacred in your life.  Embrace quiet, the stillness.  Meander along a trail, near the sea, the woods, a long walk along city streets.  Take in the sights, sounds, smells, and movement.  Write about what you see—one single observation.  Describe it and let it take you wherever it takes you.

Sunday afternoon is my favorite time of the week. Mom knows Barry is watching Nascar, which means we get approximately 3 hours of total peace and quiet.  No interruptions, just Barry, myself and Maggie May. Oops….I can’t forget Shotgun, the fish.

Don’t get me wrong, having mom here is turning into a blessing. I feel better knowing she is close, since Barry and I have handled illnesses like hers, in the past. Although she can be challenging to deal with at times, she is my mommy and has a way of keeping life interesting around the house.

On Sunday afternoon, Barry and I veg-out in our chairs in the living room. Maggie will make the rounds from me, to Barry and then to the couch, where she will usually stay snuggled up in her blanket. She is the sweetest looking thing all snuggled up and sleeping.

The funny thing with our little pup, is that she poots (little squeakers) and snores like a sailor when sleeping. If you are sitting near her when the squeakers start, Move fast!

As Barry and I watch the race, I can hear the bubbling fish tank in the background. Noise from the street is minimal, most days. The weekends appear to bring out Motorcycle alley, on the road behind us. I think a local riding group meets at the clubhouse nearby to start there weekend ride.

We live in a beautiful area to ride. I enjoy hearing the motors ride by every weekend. Maggie doesn’t understand and spends time watching them out the window. Just precious.

As the racecars on the television make their preverbial left turn for the Nascar fans; the hum of the engines slowly makes my nap draw closer. I spend my time during the race talking with Barry, making a list of things I need to do for the week, and I work on my nails. When my body is to the point, that the hum of the engines makes me want to curl up with a pillow and blanket, I do! I usually sleep like a baby, until Barry wakes me up to get ready for church.

My house is not perfectly clean. It looks lived in. In my opinion, your home should be clean and lived in. There are a few clothes I need to hang up on the rocker. The pup keeps the couch turned upsidedown. Barry is quietly rocking in his recliner, close to napping himself. Mom is very quiet in the back. I need to checkmon her.

Here I sit, typing my post. If I’m not too sleepy, I’ll get my word for the weekend posted. Otherwise, I’ll play catch up all week. My everyone have a wonderful Memorial Day! Shake a soldiers hand and say thank you. Hope everyonenis blessed with weather as gorgeous as ours. Be safe!

Daily Prompt: Goals

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When you started your blog, did you set any goals? Have you achieved them? Have they changed at all?

Starting a blog was not our idea. Barry and I started sessions with a neuropsychological counselor, Dr. J. Since Barry and I had both recently suffered from serious Neurological health issues, we were butting heads regularly and could not decide how to solve our issues.  At the time, she felt we needed a place to write our emotions and situations down. She felt Barry and I would adjust better, to our new lives, if we put got everything out in the open and talked out the issues we wrote about.  

Goal number one would be for us not to hold our emotions in. When a problem or issue occurs, document it. Write down everything, every detail possible. She did not specifically mean a blog, but a journal. I chose a blog, rather than the other, to really get feedback from others on what Barry and I were facing. 

I believe our goal with a journal / blog met and will continue to be met. Barry was uneasy to start. He has never been one to share his emotions. He is learning that we are two new people and that we have to learn to like the new “Barry and Jill”. We are both learning to look at the big picture, called life. For a while, we forgot we needed to care for each other, not just meet our own needs.  We are also figuring out the way to co-exist and falling in love with each other all over again.  

Goal number two was to spend at least an hour per day alone, together. We spent a few weeks having lunch out, daily. Applebees our favorite lunch spot for months.  The staff knew us on site and what our regular order was. As Barry’s health improved, we increased our time and headed to the gym and when able, we added a walking routine to our daily regimen. We continue our exercise routine today. We are slowly working on gardening projects around the house. Our yard has paid the price for our illnesses and we would like to slowly get it up to par.

Barry struggled with retirement. He attempted to go back to work, but was never able to make it past part-time. By mid-day, he was unable to control the stress. He finally bit the bullet and retired at the end of April. In close to 30 days, he almost has his “Honey-do” List completed. Retirement has energized him. I love it!  

The neuropsychological counselor we were seeing had to close her practice due to an illness. Barry and I continue to follow her advice and our relationship grows stronger daily. I am currently facing another serious illness. Barry is being a doll and extremely supportive everyday! 

Thank you, Dr. J! You are with Barry and I daily. God bless you!!!!!

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Post Lumpectomy Unexpected Infection

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Wednesday morning, I woke up feeling fine. I had a banana and sat down with a cup of hot decaf to walk my voice up. Barry was going to the hospital for blood work and bringing breakfast home with him. I crawled up in my favorite chair and got comfy under a blanket. While waiting for Bear to get home, I started to feel horrible. I got up, went back to bed and crawled under all the covers. 

Bear got home and pulled the thermometer out. Other than feeling like a truck had run me over, I felt good. My temperature was headed over 100° at that time. I was a bit dizzy and nauseated, but just extremely cold. I stayed folded up in the covers and rested. My temperature slowly climbed to 102°.

Barry called the breast surgeon‘s office and spoke with the nurse practitioner. She suggested I be seen by a doctor. My family doctor was closer than the breast center, so we called Dr. R.. She saw me at 3:30pm. After a bit of a work-up, she decided it was the incision under my arm. She sent me on my way with orders to rest, take my antibiotics, drink lots of fluids and see breast surgeon as soon as possible.

My private nurse, Barry, is watching me like a hawk. We saw the breast surgeon today. They agreed with my PCP on the diagnosis. They took a good look at the incision; pulled a loose suture out and the pain under my arm went immediately away. I was instructed to use the arm as much as possible, to avoid further fluid build-up. Of course, I was told not to over-do it. More drinking was encouraged and I’m to get the fever gone before my next surgery on the 28th. They want to get my margins clean and me free of breast cancer. I’m ready to be still for a bit. My running legs are getting tired. My chauffeur is starting to show a little wear. I can’t drive at the moment. My poor Bear catching all the driving duties.

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Post Lumpectomy: Day 9 pathology report from Dr. S

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When you go to a doctor’s visit for a pathology report, life can get a little scary. They tell you they caught it early and it will be easy to handle once out.

I’m not worried about the results, my life is in the hands of Our Glorious Heavenly Father. I’m ready for whatever he has planned for me.

I’m getting a bit frustrated with things going wrong with me. I’m especially frustrated with the constant need doctors have to cut holes in my body. It will not take long for my body to look like a road map of scars. I need to make an appointment with a dermatologist next. I have a few places that need to be checked out.

Cowdens Syndrome is manageable, but you have to stay on top of your screenings. Miss one could mean a major life change or your life. At the moment, my head is spinning and I can not turn it off.

There are so many health issues going on with me at the moment, it is hard to judge what to handle first. The priority at the moment, is the breast cancer. My knee would have to be next and the growth on my tongue is third. Within the breast cancer treatment, I have been getting treatment to the left knee. I have an appointment next week concerning my tongue. We’ll see.

Received the pathology report today from surgery. My lymph nodes are clear, but the cancer had spread in the tissue around the tumor. I have to have another operation to let the doctor remove more tissue.

Unfortunately, the process I’ve just been through is about to repeat and could repeat numerous times until she is happy with the amount of tissue she has removed. I’m not happy with the thought of more surgery, but I do not want this mess growing in my body.

Well supper is ready and I’m off to serve it up. Have a great evening…….

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Writing Through Cancer: When life hurts, writing can help. Weekly writing prompts for those living with debilitating illness, pain or trauma.

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Stories—the small personal ones that bring us close as well as those of the larger world—foster compassion.  In the telling of our personal lives, we’re reminded of our basic, human qualities—our vulnerabilities and strengths, foolishness and wisdom, who we are…, through the exchange of stories, [you] help heal each other’s spirits.

–Patrice Vecchione, Writing and the Spiritual Life

Growing up, I was a shy child. As the years went on, I came out of my shyness a little, but as I grew older and started getting serious about life the shyness reappeared in certain situations.

I think we all go through an awkward phase as a child, I’d say I hit mine around the sixth-grade or seventh-grade. The summer I turned twelve years old, I shot up over six inches in height. Mom thought she was purchasing stylish glasses for me, when truth be told, they were the ugliest glasses I had ever seen.

Anyone with an opportunity and a mean streak took it upon themselves to let me know how gawky and goofy I looked in those glasses. As I got taller, I was the second tallest girl in my class and the first girl to develop in all the right places. I was taller than everyone in the class. That just added to the fire.

Another thing that added to my “nerdy” status is that I developed allergies as a child. I grew up when they didn’t know how to treat allergies. I was always sick, had a lot of food allergies and did a ton of throwing up after meals. Not so easy to make friends when you are literally the snotty girl, always scratching and have the ability to vomit at the drop of a hat. Kids can be so mean. I was sick so much, mom thought I needed to see a doctor daily. The ironic thing about mom running me to the doctor constantly, was that the brain tumor I have has been there since I was a child. I was sick, but not for any of the reasons she was taking me to the doctor.

All of these, should have been good things, but the kids I grew up with saw a vulnerable girl they could hurl their latest ammunition at. It was like some bully kept a book and said “let’s pick on her today.”

One stupid new girl decided she would target me on her own. I became her pet project at her new school. She took particular dislike to my glasses. I was called “Four-Eyes” so many times in the eighth-grade that I decided to let her foolishness stop bothering me and decided to kill her with kindness. Sometime in the night-grade,  the bullying stopped. The new girl, never turned nice through four-years of high school, but it didn’t matter. I didn’t let her get to me.

I took my classes, did my school work and survived high school. Most of us do. What you have to remember about bullies, is that they are just jealous or sometimes it could be as boy or girl who is sweet on you and doesn’t know how to handle their own feelings. Be patient growing up, God will get up through it! I went to college away from everyone I had known for years.

After graduating high school, the shy girl came flying out of me again. Nursing school put me into situations I didn’t know how to handle, so I did my best. If I was uncomfortable in a situation, I worked my way through it. After I was married the first time, I ran into people here and there. What I noticed the most, was they acted like we were life long friends. God says to forgive and I have forgiven.

Doctors are not kind to new nurses or old ones at that. My first nursing job, opened my eyes to how crude the medical profession can be. You would not believe, what goes on behind the scenes, at some hospitals here in Georgia. In all my life, I did not realize how ugly people can be to one another. I grew-up quickly.

After my first husband and I divorced, one of my first jobs as a single woman was at the local jail in my hometown. The saddest part of that job, was seeing more people I went to high school with in jail than on the streets of town. A few were hard to believe, but others I had seen in trouble for years. I dated a deputy for a while, and he got a bit stalkerish. Someone in jail, that I had known for years, stood up for me. He did the right thing and said something when the time was right. I never got the chance to say thank you! Thank you, Joe! I know he’ll never see this, but at least I have said it.

I went through many jobs, that finally lead me to the career I was meant to have. I stayed with that career until I was forced into retirement by a nasty brain tumor called a gangliocytoma. I would later discover the tumor was just a symptom of a genetic disorder called Cowden Syndrome. Sine that diagnosis, I have survived Thyroid Cancer and I am dealing with breast cancer. Every month, I am in some doctor’s office being probed, prodded or x-rayed.

Note to all doctor’s that do lumpectomies, tell your patient’s about the fluid build-up possibility and the possibility of acting like a leaky pipe under your arm. It would make life after lumpectomy less stressful.

I’m getting tired, but I refuse to let this mess get the best of me. God has a plan for my life, otherwise I wouldn’t still be around. It is not my place to question that plan. I have tolerated this breast cancer episode better than things in the past. Either I am tired of fighting, or learning how to give it to God finally. I’ve prayed about the subject. It must be sinking in.

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Day One: Post Lumpectomy

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I promise I’ll only do this today, but this is where my mind is and I HURT! You do not realize how much certain parts of your body move, until some doctor cuts a hole in it. I just have one main word to get across in this post and that is OUCH!

I feel as if I have been wrestling with barbed wire. I don’t know who intubated me, but they may need a little more practice. I know they tried their best. Obviously got it in the right place, but my throat is incredibly sore from their practice. My twitching vocal chords did not help, I’m sure.

As the radiologists was inserting the guide wire, into a supposed numb area, I felt like she was jamming a piece of barbed wire in to help Dr. S. find the tumor. I’m glad I was asleep to have it removed.

WOW……..what an ordeal for a Stage One Breast Cancer. I’m just glad this was not 20 years ago. I saw that surgery in nursing school. Medical technology has improved immensely. Thank Goodness.

I’m not out of the woods yet. We are waiting for the last pathology report to find out the treatment I need.

Please keep up the prayers, cross you fingers, cross your toes, send a few angels my way……I need all the help I can get to make it through this.

Thank you all (had to let my Southern Belle shine) for your concern, support and prayers. You are all wonderful! Just a short post for today, I need another pain-giggle pill. I’m not one to like medication, but this stuff is good and I like to giggle!

From the bottom of my heart, thank you!

 

Update: Jill

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Jill is doing well. Surgery started late and took longer than anticipated. Now we wait 7-10 days for pathology report. We finally got her home. I got her settled in her chair, all doped up and sleeping. Now  I.m gonna figure dinner out and sit myself down soon! Thank you all for your prayers and support. Jill truly enjoys blogging and enjoys all of you!

Thank you,

Barry Baynes

 

Nervous Nellie……

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Here I sit at 5am, wide awake. Unable to turn my head off long enough to get some rest. I started off sleeping, but Maggie‘s allergies started acting update, causing her to wake us up. At least wake me up.

Barry is down for the count. I couldn’t get him to turn over he’s so deep in sleep. He’s wearing himself out to make sure I’m ready for next week. He wants me well rested to handle the stress that will hit on Tuesday.

I’m ready for whatever comes. It is in God’s hands. I’m not worried. Barry and I have made plans, for when they are needed. I’ve called all my family or emailed them. Everyone is being incredibly supportive. Mom is handling things better. She has stopped crying every time she sees me.

I have faith in my doctor and going to the best hospital around. I walked out of that building after brain surgery, I’ll do it again on Tuesday. When I leave, I will be cancer free. That will be the best part of my day!I’m going to make some coffee, almost time to get ready for church.

We are supposed to get up to 2 inches of rain today. The yard will go nuts! Flowers are coming out beautifully, so far. Rain will get things going……..Have a gorgeous day!