Monthly Archives: August 2013

I want to write, but I am at a loss of words!

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God doesn’t give you things you can’t handle, the things He gives you make you stronger. I can handle a lot, but just not sure how much more I can take.

When does your cracking point kick in? Do we have a cracking point or are we made to take and take and take…more more…How do you judge when enough is enough?

Is it that when God sees you  overwhelmed, he releases the more more and gives you a break?  I am not going to lie, I could use a huge break, but I am not sure my sweet husband can handle a break. At least over the next few weeks. We have to get the house ready for him to come home.

For the next six weeks, he will be on IV antibiotics and then oral antibiotics the rest of his life. A physical therapist will work on his strength at home, but I am still terrified. His lungs are filling up with fluid again, even sleeping with a bi-pap machine on. He is off oxygen all together, but I’m scared.I want to be able to care for him properly at home.

I was the one that couldn’t tell he was sick. He started showing signs of not feeling well, but refused to admit something was wrong and would not go to the doctor. I feel guilty that I didn’t push, now his cardiologist can’t give me a good answer about how much time he has. I can tell he is stressing over it, but he won’t talk to me. I have him scheduled with his psychiatrist at the first of the month. Surely home will be our new location by then.

I ask that everyone help me pray for grace, strength and mercy. Maybe with enough Faith added to the list, Barry and I will survive. Forgive my ramblings today, I am still am emotional disaster.

That dreadful place called the hospital, It was so hard to leave him there

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Sitting here, in no way can this place  be called fun. I am beginning to understand why people do not like hospitals. Yes, they are places where the sick or injured come to be healed. Hospitals are meant to be full of joy at the birth of a child,  or extremely sad watching a loved one in pain.

Painful things happen in hospitals. A lot of people do not how what or how their bodies work making things painful and scary. Some people experience trauma or have bad memories or cannot handle the emotions that hospitals bring out in you. Others just do not like pain.

The one I am sitting with loves being at home, in his recliner, his wife in her chair next to him and the dog sitting at his feet. Water glass next to him on the table, watching a crazy comedy on the television. He has his cute little quirky sense of humor. I never know what to expect out of his mouth. He even talks for the dog! It is so funny! She just turns her head side to side looking at him like he is nuts.

 

They want me to place him in a long-term care hospital. I do not feel that is where he needs to be, but I’m not a doctor. In my opinion, that will only make him worse. He needs some rehab. I can see a rehab center.

In the two days I have been with him, he has perked up.  Getting in and out of bed on his own (even when the staff did not want him too) He’s getting adventurous, I just hope he does not hurt himself. I love him so much it hurts. The thought of being without Barry, well, it kills me. We aren’t at the age that this kind of thing is expected. I just feel so very lost.

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Absolute Worst Two Weeks Of My Life

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The past five years were the beginning of our on-going nightmare. It has been one serious medical issue after another.

Two weeks ago, Barry was hooking the computer to the television for us to stream the evening service. Barry suddenly starts to fall straight backwards. I called out to him several times, without response. Barry takes a blood thinner, so he truly did not need a lump on his head.

When his head hit the wooden ledge on the front door, he started convulsing. He ended up on his right side, I checked him for injuries, covered him up with a blanket and got a pillow. After around three minutes, he started coming around. He was quite confused and wanting to know what happened. By this time, I had gotten mom and 911 had been called. They were incredibly slow. Apparently, the county EMS was hopping all night.

Once in the Emergency Room, they got things going. There was something going on with his heart. He had a strange arrhythmia that the hospital felt needed more attention, so he was admitted.

The next night, there was another episode opting a move to the ICU for better observation. I found out about the transfer when Barry called the next morning to say he was being trasferred to Saint Joseph’s Hospital within the next hour.

I got ready and headed to Atlanta, as quickly as I could. My sweetheart does not like hospitals and I knew he would not want to be alone. I stayed with Barry for two nights.

Then I had a chemo treatment and on Saturday, the injection to boost my white blood cells. The day of my chemo treatment, they discovered a blood clot under my right arm. I started the injections they ordered before chemo. The next day my right arm was acting up, so I requested to see the infusion center fellow doctor. Since starting the injections, shortness of breath occurred everytime I preformed a task or stood up to walk. I was concerned the clot had moved to my lung.

I was sent straight to the Emergency Room for evaluation. We chose to go to the hospital Barry was in. He was already downstairs having a pacemaker put in. Due to my injection, I was unable to see Barry before the procedure.

Our wonderful pastor made it just in time. Barry was thrilled to see him coming. While I was being evaluated, my sister went to check on Barry and let him know what was going on. He was worried. I tried to convince him I was fine, but do men ever really hear what their wives say?

I was released with a diagnosis of pneumonia. More drugs to take. Gotta love it! Kristie and I almost ran to his room. Kristie needed to get on the road soon. Not only does she have a husband and two boys, she had taken the role of chief caregiver to our father. Barry wanted me to stay, but I was running a fever. He had more test scheduled for the next day, he’d never know I was there or not.

We headed home and packed a bag. I was ready for the next day. My nephew was picking me up to drop me at the hospital for a few days. I wore a mask when I had the fever, and removed it when I did not. We met Barry’s surgeon that morning. They were scheduling his surgery for morning. During the night, I recieved a call that my father had passed away. After surgery, I would not be able to see him. He would be moved to CVICU and I would not be able to see him freely. His doctor told me to go home and come back when he is stable.

Barry had an abcess in his heart and the wall of his heart was erroding. They had to re-build a section of the heart to be able to get a valve in and they were unable to use the mechanical valve. A pig valve was placed. He has been in ICU for over 6 days and today, they finally got him off the venilator. He was up in a chair last time I spoke to the nurse. Such a huge improvement since last week. I was terrified of loosing him. I lost my father.

My blog post my be scattered, but I will get back to normal soon. Missed you all!

Jill

Word of the Weekend| Effusive

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effusive\ih-FYOO-siv\
 
adjective
 
1 :
marked by the expression of great or excessive emotion or enthusiasm 
2 :
archaic : pouring freely 
3 :
characterized or formed by a nonexplosive outpouring of lava
 
Lila’s history teacher wrote an effusive letter of recommendation.
 
“It’s never easy for opponents from the opposite party to find specific praise at library unveilings, but Carter was effusive. ‘Mr. President, let me say that I’m filled with admiration for you and deep gratitude for you about the great contributions you’ve made to the most needy people on Earth,’ said the 39th president.” — From an article by John Dickerson on Slate.com, July 2, 2013.

We’ve used “effusive” in English to describe excessive outpourings since the 17th century. In the 1800s, geologists adopted the specific sense related to flowing lava—or to hardened rock formed from flowing lava. “Effusive” can be traced to the Latin verb “effundere” (“to pour out”), which itself comes from “fundere” (“to pour”) plus a modification of the prefix “ex-” (“out”). Our verb “effuse” has the same Latin ancestors. A person effuses when he or she speaks effusively. Liquids can effuse as well (as in “water effusing from a pipe”).

A Night I Wish Would Just Go Away Is Turning Into The Weekend That Needs To Just Stop! I Prefer It To Stop | But Life Goes On

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You read about Barry being admitted to the hospital on Wednesday. Thursday he did great. Friday he did great, During the night, his heart went a little haywire and he was trasfered to ICU. I received a phone call fron Barry 5hat he ews in ICU and was due for transfer  to Saint Joseph’s Hospital in Atlanta. He will be  in Cardiac ICU. I am a bit aggravated with the lofal yocal hospital.

When I went for chemo, it was discovered that I have a Deep Vein Thrombosis in the axillary vein going under my right arm. I have to give myself injections two times daily for the next week. Not sure of the cause, but it is near my chemo port. Hopefully these injections will work out my troubles. Have to get the injection that boosts my white blood tomorrow. Any volunteers to take my place?

A Night I Wish Would Just Go Away| Another

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After Barry’s stroke in 2011, I was praying that similiar episodes would be at least ten to fifteen plus years down the road. But as we all know, it is not our choice.
God’s plan guides the flow of our lives. We have knowledge of the plan’s existence,  but we have no choice in the details or are we given choices of how our plan plays out. God knows. Only he has knowledge of our life plans.

Since 2010, Barry had an aortic valve replacement; a large territory, massive MCA; and now last night, a seizure has been added to the list. The etiology is currently unknown. Other than having every test in the book today, they can’t seem to figure it out. He has swelling on the side of the old stroke, but no other results.

Last night he was connecting the computer to the television, so that we could watch the live stream of our Wednesday night church service. We chose not to go last night because I had run a fever most of the day. He was standing at the computer, near the television when I realized he was falling backwards. I called out to him several times without a response.

I started calling for my mom to help. She called 911 to get an ambulance. He hit the front door, with the back of his head, and started shaking from head to toe.  He was kicking his legs and flinging his arms. About five minutes into the seizure, he came out of it and started to talk. He didn’t know what had happened and wanted to know why he was in the floor.

When I wa able to check him out, he has a lump on the back, left side of his head about the size of a grapefruit. It is still swollen today, but getting tender. He is having a little pain in his left shin. They said they were going to do an ultrasound to make sure he isn’t forming a clot. He started getting back to normal, but I made him lie still until the ambulance arrived.

They checked him out, loaded him up and headed to the hospital. We’ve been here since nine o’clock last night. He rested well, I just want info on the problem! Wish us luck! An Associate Pastor came out from church. We had a nice visit. He has had a few calls from other church members.The Good Lord is with us, but please keep us in your prayers! Thanks to all of you for your continued support and kindness!

Jill B.

Daily Prompt: Never Again

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Have you ever gone to a new place or tried a new experience and thought to yourself, “I’m never doing that again!” Tell us about it.

Barry, my adorable husband, wanted to share a place from his past with me. Barry was a Boy Scout Troup leader for years. While we were in the area of the Boy Scout Camp, we decided to ride up the mountain to see the camping area.

Neither of us thought about the mechanical condition of the truck, when we decided to tackle a mountain. Straight up the side of the mountain to get to the campsite. Not only was the road dirt, but it had been raining all week long.

As we started up the mountain, the truck started rocking and we realized the road was incredibly bumpy. Barry says, “I guess we need to change the shocks.”

By the time we reached the campsite, my body shook by itself and my teeth chattered without any help from the temparature in the air.

The campsite was beautiful, but that was the first and only time I eill ever see it. If a helicopter dropped me at the top of the mountain, I might consider a second trip. Until that day arrives, I’ll treasure my memories of our crazy ride up the side of a moutain.