Just Write: Loss

Loss comes in many forms, when you least expect it.
It can mean anything from a loved one to body process, like speech. Loss hurts.

My brain tumor has left my voice weak and I have a lot of trouble speaking. When I have something to say, I feel like I am pushing words out and I can be loud.  I cannot help it. I truly cannot help it, nothing hurts more than having people talk over you.

One thing I have learned since becoming disabled, is people are rude. No one has respect for anyone. What has happened to civility?

People do not listen if you have a speech impediment. They automatically discount you as a person, the minute they realize you have a problem. They take what they think you are saying and go with that, even when they have it totally wrong.

It hurts worse when it is those close to you. The pain is worse when someone you love cuts you off mid-sentence without attempting to hear what you have to say. I actually fired someone for insubordinance when they made fun of my voice. It was at a time when Intruly needed the help, but I wasn’t putting up with that type of behavior.

I feel childish complaining. Barry had a stroke in 2011 and mom is in the beginning stages of dementia. In a house full of brain injuries and so many losses, do I have the right to be upset? When I need help with a phone call, should I be given flack or help with a call?

I am becoming used to being disabled, but this part is getting worse and I am struggling with how to handle my home situation!

We live a quiet life at home, not a lot of noise. Noise bothers all of us.

I’m 47 yesrs olf living like a 80 year old. Maybe it will help down the road.

Jill and Barry Baynes

 

Shopping with Mom

image

The three of us went for a few groceries this afternoon.  Mom needed some milk snd had forgotten to pick it up, so we stopped at our friendly corner Kroger store.

We sat in the car while mom ran in. I pulled the car forward a little to look at a vine they had for sale. Looked like Mini-Black-Eyed Susans. Very cool looking vine and I want one!!!

While checking thenvine out, we didn’t see mom come out of the store and get into another car.  She had been sitting there for maybe 10 minutes when the owner of the car appeared.  They were curious ad to whom was in their car and started demanding answers loud enough that it got my attention.

Barry hurried out of the car to mom’s rescue as a police car pulled up. Twenty-five minutes later and avstetn lecture from Officer Goodguy, we headed home. Poor mom was shaking like a leaf.

The Officer meant well, but he didn’t tell us anything we were not stressing over already. The car she had gotten in could have taken off with her; she could have walked off, or dhe could have been hurt. Every horrible thing posdible wad running through my mind. Thank the good Lord she was ok.

Jill and Barry Baynes

May is Brain Tumor Awareness Month

image

Thanks for everything you did!

Thank you for everything you do to aid those of us dealing with this daily!  God Bless you all!

Jill and Barry Baynes

My sweet Brother-in-law, Libor and my nephew, Jonathan

image

I made a request to these guys this morning. They were closeby working and we needed help with a few things. I asked if they could stop by for a few minutes and lend Aunt Jill a hand, while Uncle Barry wasn’t feeling well.

I had 2 trees to plant and we needed a hole dug for the new mailbox. The Mailman is getting serious with his suggestions that we need a new one. Hint taken, we are working on it!

Libor and Jonathan blew through here mowed the grass, did the weed eating, trimmed a huge shrub, cut down a tree that was growing into the house, used the blower, and dug the holes I needed.  Jonny even put the trees in the holes for me. When it cools off a little, I need to go put water on them.

I thank the Lord daily for my family. Ask for a little help and get the works! The sweetest guys on earth!

The Company I enjoy with my morning coffee

English: Birds around a bird feeder made from ...

English: Birds around a bird feeder made from a Coke bottle in Johannesburg, South Africa. From left to right, a male Southern Masked Weaver, a male Cape Sparrow, a female Cape Sparrows, and two male Cape Sparrows. It is midwinter, so the birds are in on-breeding plumage. (Photo credit: Wikipedia)

squirrel eating from bird feeder

squirrel eating from bird feeder (Photo credit: Wikipedia)

Painted Bunting at a bird feeder.

Painted Bunting at a bird feeder. (Photo credit: Wikipedia)

Good Morning, WordPress!!

I have my coffee brewing and going make some breakfast, then sit on the back deck for breakfast. The birds are singing up a storm and raiding the bird feeders. We’ll have to refill them before the end of the day! The cardinals, chickadees and brown-headed are really flying all over the yard. Chipmunks and squirrels scurrying everywhere. A group of deer just crossed from our property and are standing in front of the school behind us. That is a beautiful sight, a doe and her babies! Three geese just flew overhead; making a ton noise for three little birds.

With the rain we have had lately, the grass is greening up nicely. The Chinese Fringe Flower Shrubs are filling out nice, but need a little trim. The Beauty Berry Bush is shaping up nicely. The berries should be coming out soon. The Corkscrew Willow Trees are gorgeous.  The blackberry bushes are taking over the backyard. I’ll wait for the berries to go and take my yard back! The lantana gets larger daily. The lilies are covered with blossoms. I hop they open together. I’d love to get some photos. The neighbors privet weeds are killing my allergies every time I step outside. The honeysuckle is getting stronger, I love the their smell.

It is getting warm out here, time for the next part of my morning routine. Get ready to run errands and take my dad to the coumadin clinic this afternoon. Have a great day, everyone!

POST: 300

sunflowers

sunflowers

Just wanted my 300th Post to be summery! Thanks to everyone out there for your kindness and support. You are a fabulous group of people! Keep it up!

Writing Through Cancer: When life hurts, writing can help. Weekly writing prompts for those living with debilitating illness, pain or trauma.

Stories—the small personal ones that bring us close as well as those of the larger world—foster compassion.  In the telling of our personal lives, we’re reminded of our basic, human qualities—our vulnerabilities and strengths, foolishness and wisdom, who we are…, through the exchange of stories, [you] help heal each other’s spirits.

–Patrice Vecchione, Writing and the Spiritual Life

Growing up, I was a shy child. As the years went on, I came out of my shyness a little, but as I grew older and started getting serious about life the shyness reappeared in certain situations.

I think we all go through an awkward phase as a child, I’d say I hit mine around the sixth-grade or seventh-grade. The summer I turned twelve years old, I shot up over six inches in height. Mom thought she was purchasing stylish glasses for me, when truth be told, they were the ugliest glasses I had ever seen.

Anyone with an opportunity and a mean streak took it upon themselves to let me know how gawky and goofy I looked in those glasses. As I got taller, I was the second tallest girl in my class and the first girl to develop in all the right places. I was taller than everyone in the class. That just added to the fire.

Another thing that added to my “nerdy” status is that I developed allergies as a child. I grew up when they didn’t know how to treat allergies. I was always sick, had a lot of food allergies and did a ton of throwing up after meals. Not so easy to make friends when you are literally the snotty girl, always scratching and have the ability to vomit at the drop of a hat. Kids can be so mean. I was sick so much, mom thought I needed to see a doctor daily. The ironic thing about mom running me to the doctor constantly, was that the brain tumor I have has been there since I was a child. I was sick, but not for any of the reasons she was taking me to the doctor.

All of these, should have been good things, but the kids I grew up with saw a vulnerable girl they could hurl their latest ammunition at. It was like some bully kept a book and said “let’s pick on her today.”

One stupid new girl decided she would target me on her own. I became her pet project at her new school. She took particular dislike to my glasses. I was called “Four-Eyes” so many times in the eighth-grade that I decided to let her foolishness stop bothering me and decided to kill her with kindness. Sometime in the night-grade,  the bullying stopped. The new girl, never turned nice through four-years of high school, but it didn’t matter. I didn’t let her get to me.

I took my classes, did my school work and survived high school. Most of us do. What you have to remember about bullies, is that they are just jealous or sometimes it could be as boy or girl who is sweet on you and doesn’t know how to handle their own feelings. Be patient growing up, God will get up through it! I went to college away from everyone I had known for years.

After graduating high school, the shy girl came flying out of me again. Nursing school put me into situations I didn’t know how to handle, so I did my best. If I was uncomfortable in a situation, I worked my way through it. After I was married the first time, I ran into people here and there. What I noticed the most, was they acted like we were life long friends. God says to forgive and I have forgiven.

Doctors are not kind to new nurses or old ones at that. My first nursing job, opened my eyes to how crude the medical profession can be. You would not believe, what goes on behind the scenes, at some hospitals here in Georgia. In all my life, I did not realize how ugly people can be to one another. I grew-up quickly.

After my first husband and I divorced, one of my first jobs as a single woman was at the local jail in my hometown. The saddest part of that job, was seeing more people I went to high school with in jail than on the streets of town. A few were hard to believe, but others I had seen in trouble for years. I dated a deputy for a while, and he got a bit stalkerish. Someone in jail, that I had known for years, stood up for me. He did the right thing and said something when the time was right. I never got the chance to say thank you! Thank you, Joe! I know he’ll never see this, but at least I have said it.

I went through many jobs, that finally lead me to the career I was meant to have. I stayed with that career until I was forced into retirement by a nasty brain tumor called a gangliocytoma. I would later discover the tumor was just a symptom of a genetic disorder called Cowden Syndrome. Sine that diagnosis, I have survived Thyroid Cancer and I am dealing with breast cancer. Every month, I am in some doctor’s office being probed, prodded or x-rayed.

Note to all doctor’s that do lumpectomies, tell your patient’s about the fluid build-up possibility and the possibility of acting like a leaky pipe under your arm. It would make life after lumpectomy less stressful.

I’m getting tired, but I refuse to let this mess get the best of me. God has a plan for my life, otherwise I wouldn’t still be around. It is not my place to question that plan. I have tolerated this breast cancer episode better than things in the past. Either I am tired of fighting, or learning how to give it to God finally. I’ve prayed about the subject. It must be sinking in.

This slideshow requires JavaScript.

Daily Prompt: The Little Things

Describe a little thing — one of the things you love that define you worlds but is often overlooked:

We glide down the drive

and come to a stop

quickly, we gather our belongings

Jumping out of the car,

we head for the door

once inside, we begin our evening ritual

laundry and dinner the only thing our minds

our nightly routine begins

as dinner simmers,

we gaze through the front window

when reality strikes

our yard is looking neglected and alone

the lilies look dry with their tender leaves disheveled

knockout roses are begging for attention

hostas and lantana are peeking their tender leaves out

reaching toward the sun

our yard is being ignored, as we live our hectic life

yard work not easy to fit into a schedule

It is time to get busy weeding, fertilizing and mulching

The grass will call our name every weekend

hoping for a good cut

our home is lovely, but time has come

summertime is around the corner

and our flowers need room to grow……..