Writing Through Cancer Daily Prompt for the week of May 12, 2013: “Mommy, It’s Your Happy Day”

Mommy, it’s your Happy day!

I plan to take this a different way. Motherhood is a previous gift from God. Anyone lucky enough to be blessed with such a privilege, should cherish every moment they are given. Growing up, the only things I wanted to do was fall in love and have a houseful of children. My first husband and I tried for years. We both suffered through 5 miscarriages and a physician told that us if we wanted children, we needed different spouses. Fortunately, our inability to have children was not the reason our marriage failed.

With a pregnancy, you start making plans, look forward to the future and then you realize the pregnancy is failing. It breaks your heart. After the fifth miscarriage, your heart feels like a dried up lump of clay. There is no way to describe the agony your body goes through mentally and physically. A miscarriage is a horrible thing to live through. Accepting that it doesn’t seem to be in the Good Lord‘s plan for you to become a mother or father is intense, but as Christians our pregnancies are in the hands of the Lord.  Our lives are part of God’s plan. He has a plan for us all. It is not our place to question that plan. Even though it is in the Lord’s Plan, you still go through a period of regret and doubting. It is not easy to hand everything over to the Lord without some grieving. You get past the emotions and find the strength to give it over to God and get on with your life. You do a lot of praying. Asking for Grace and Strength to get through the misery. You do get through it!  I did it five times and lived. So did my ex-husband. He has remarried and has a son. 

I , also, have remarried. I managed to find my place in this world. I met my soul mate in 2001. We were married three years later. I love him more everyday. I don’t know what I would do without him. He makes me want to be a better person. We have both done things that neither of us ever thought we would do. I made an attempt at being a step-mother ( I gave up when my step-son made it clear, he wanted nothing to do with me). Barry is learning to love my mother.

Her health was failing and she did not need to be living in the situation she was, so we packed her up and moved her in with us. The situation is actually working.  I did not think it would. As mom ages, she is learning the art of compromise. It has tickled her pink, to have Barry start calling her “Mom“.

Barry put’s on a Mother’s Day show every year. He says “I was a wonderful mother. ” When Barry and I married, we discussed children. He asked if I was okay with not having a child. He said he was ready to focus on home and retiring. I was good with that. Our health issues haven’t allowed us to do everything we wanted, but we still enjoy each and everyday. We now have a beloved family pet boxer, named Maggie. She thinks she is human. In a sense, I’m mothering our family pooch.

Barry’s mom passed away a few months before he proposed. I was lucky enough to spend a little time with her. She was a sweet, wonderful woman. I know where her son gets it from.We did agree on one thing. We started to make the same statement at the same time once. That statement was, “He sure does have the best-looking legs around!” She turned and looked at me oddly and said, “I knew I liked you!” When Barry got in the car to find us giggling, he wanted to know if he should be worried.  His mom looked at me and smiled. We didn’t say a word. Barry started the car and headed to the restaurant. 

My mom is a character. I told Barry stories before he met her. He later told me it found my stories hard to believe, until mom started letting the true Betty out in front of him. Mom is a doll and a beautiful woman. She is the perfect work the room character. As long as things are going her way, she is fine. I love her to pieces and look like I could be her twin. I will do anything in the world for her, when I can. Mom living with us has been great. I’m getting to know mom better than I ever have.

Her health is declining and I am trying to help her deal with or understand the changes her body is going through. She is actually listening to me and learning about her illness. Telling my mother the truth about things she does Isn’t easy. I’m getting better at it and she is taking it better.  She has not taken my illness well. I’ve had to ask her to change certain behaviors to help me deal with my health. 

My sister’s and I got our families together and took her out for lunch on Mother’s Day. Barry and I treated her to a new haircut. She really looks great. Sandy has taken her on a trip to North Carolina; to see her grandson graduate from college.I hope she is enjoying herself. She deserve’ it. She is my mom’s.

my momma

my momma

Daily Prompt: Too Big To Fail

Tell us about something you would attempt if you were guaranteed not to fail (and tell us why you haven’t tried it yet).

Since brain surgery, I’ve had kind of list of things I’d like to do. I wouldn’t call it a bucket list, it is more of a list of the things I’d like to complete in my life time; or things I’ve started and never finished. There are a few items on my list that would qualify for a bucket list, but I am not in need of a bucket list. My list definitely needs to be “The Things I Procrastinated over and Want to Finish”.

Let’s get to the point. This daily prompt made me think of that list. Number One on my list is taking a ‘Zip-linetour. I love the outdoors,gardening, hiking, fishing, boating and all other fun outdoor activities are out of the realm of possibility since becoming disabled. Barry has adapted a few household items to help with my love of gardening and we have narrowed hiking trails down to the safe ones (I never go alone). 

The thing is, I long to be high in the air on a platform, basking in the warm sunshine. I want to reach up, grab hold of that little bar,  and slowly step off the platform. I want to feel the wind on my face and in my hair, I long to feel the sun warming my skin as I glide through the trees, I want to look down at the forest and imagine all the colors are a huge quilt laid out beneath me; I’d love to pass a bird in flight and say “Boo”! I want to bask in God‘s creation.

My health is keeping me from following my dream at the moment.  At the moment, I am not physically capable of handling a Zip-line tour. I’m dealing with breast cancer, which is turning into my latest stop on the Cowden Syndrome trail. I have a genetic disease that is slowly eating its way through my body. Putting off my zip-line tour this time is only the 7th time we have done so. Hopefully, this fall, I’ll be healthy enough to go for a little tour through the trees. Wish me luck!

English: A zip-line over the rainforest canopy...

English: A zip-line over the rainforest canopy. Taken January 4, 2005 in Costa Rica at the Arenal Paraiso Hotel’s zip-line course. This course requires self-braking using a special purpose-built reinforced leather glove Photo taken by Ken Haufle. Category:Zip-line (Photo credit: Wikipedia)

 

Writing Through Cancer: When life hurts, writing can help. Weekly writing prompts for those living with debilitating illness, pain or trauma.

Stories—the small personal ones that bring us close as well as those of the larger world—foster compassion.  In the telling of our personal lives, we’re reminded of our basic, human qualities—our vulnerabilities and strengths, foolishness and wisdom, who we are…, through the exchange of stories, [you] help heal each other’s spirits.

–Patrice Vecchione, Writing and the Spiritual Life

Growing up, I was a shy child. As the years went on, I came out of my shyness a little, but as I grew older and started getting serious about life the shyness reappeared in certain situations.

I think we all go through an awkward phase as a child, I’d say I hit mine around the sixth-grade or seventh-grade. The summer I turned twelve years old, I shot up over six inches in height. Mom thought she was purchasing stylish glasses for me, when truth be told, they were the ugliest glasses I had ever seen.

Anyone with an opportunity and a mean streak took it upon themselves to let me know how gawky and goofy I looked in those glasses. As I got taller, I was the second tallest girl in my class and the first girl to develop in all the right places. I was taller than everyone in the class. That just added to the fire.

Another thing that added to my “nerdy” status is that I developed allergies as a child. I grew up when they didn’t know how to treat allergies. I was always sick, had a lot of food allergies and did a ton of throwing up after meals. Not so easy to make friends when you are literally the snotty girl, always scratching and have the ability to vomit at the drop of a hat. Kids can be so mean. I was sick so much, mom thought I needed to see a doctor daily. The ironic thing about mom running me to the doctor constantly, was that the brain tumor I have has been there since I was a child. I was sick, but not for any of the reasons she was taking me to the doctor.

All of these, should have been good things, but the kids I grew up with saw a vulnerable girl they could hurl their latest ammunition at. It was like some bully kept a book and said “let’s pick on her today.”

One stupid new girl decided she would target me on her own. I became her pet project at her new school. She took particular dislike to my glasses. I was called “Four-Eyes” so many times in the eighth-grade that I decided to let her foolishness stop bothering me and decided to kill her with kindness. Sometime in the night-grade,  the bullying stopped. The new girl, never turned nice through four-years of high school, but it didn’t matter. I didn’t let her get to me.

I took my classes, did my school work and survived high school. Most of us do. What you have to remember about bullies, is that they are just jealous or sometimes it could be as boy or girl who is sweet on you and doesn’t know how to handle their own feelings. Be patient growing up, God will get up through it! I went to college away from everyone I had known for years.

After graduating high school, the shy girl came flying out of me again. Nursing school put me into situations I didn’t know how to handle, so I did my best. If I was uncomfortable in a situation, I worked my way through it. After I was married the first time, I ran into people here and there. What I noticed the most, was they acted like we were life long friends. God says to forgive and I have forgiven.

Doctors are not kind to new nurses or old ones at that. My first nursing job, opened my eyes to how crude the medical profession can be. You would not believe, what goes on behind the scenes, at some hospitals here in Georgia. In all my life, I did not realize how ugly people can be to one another. I grew-up quickly.

After my first husband and I divorced, one of my first jobs as a single woman was at the local jail in my hometown. The saddest part of that job, was seeing more people I went to high school with in jail than on the streets of town. A few were hard to believe, but others I had seen in trouble for years. I dated a deputy for a while, and he got a bit stalkerish. Someone in jail, that I had known for years, stood up for me. He did the right thing and said something when the time was right. I never got the chance to say thank you! Thank you, Joe! I know he’ll never see this, but at least I have said it.

I went through many jobs, that finally lead me to the career I was meant to have. I stayed with that career until I was forced into retirement by a nasty brain tumor called a gangliocytoma. I would later discover the tumor was just a symptom of a genetic disorder called Cowden Syndrome. Sine that diagnosis, I have survived Thyroid Cancer and I am dealing with breast cancer. Every month, I am in some doctor’s office being probed, prodded or x-rayed.

Note to all doctor’s that do lumpectomies, tell your patient’s about the fluid build-up possibility and the possibility of acting like a leaky pipe under your arm. It would make life after lumpectomy less stressful.

I’m getting tired, but I refuse to let this mess get the best of me. God has a plan for my life, otherwise I wouldn’t still be around. It is not my place to question that plan. I have tolerated this breast cancer episode better than things in the past. Either I am tired of fighting, or learning how to give it to God finally. I’ve prayed about the subject. It must be sinking in.

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For the Week of April 28, 2013: Writing as a Spiritual Practice

Through the exchange of stories, we help heal each other’s spirits…Isn’t this what a spiritual life is about?

–Patrice Vecchione, Writing and the Spiritual Life

Writing for me is an outlet to show my true self. Writing allows me to be completely honest with the world and myself. I have become more verbal on topics I would normally hold in to eat me alive with stress.

Recently, I have felt a new strength developing through my writing. I feel my faith has strengthened and I am changing as a human being. I look at the world differently. As a child, I the beauty of the world amazes and astounds us. As adults we have forgotten what a beautiful place we have been blessed with by our precious Lord. It suggests the old saying. “Stop and Smell the Roses”

http://en.wikipedia.org/wiki/Stop_and_Smell_the_Roses

I look at my family, friends and life in general differently. My health has been a huge factor in the changes noted in me. I have been through so many lab tests, x-rays, CAT Scans and MRI’s that you could probably see me glowing in space or find me easily with a satellite. Dealing with my rare genetic disorder has brought patience and tolerance into my life (which are 2 things I was sorely lacking in). I’m a nurse. I once thought I was blessed with the patience of Job until receiving my first diagnosis and my roller coaster ride started. After brain surgery, I quickly learned to dislike the word, Time! I’ll re-post from my blog on ‘Time’.

           ******This is a re-blog. I felt it was appropriate to post it again, cuz that old       dislike is the word ‘Time’ is coming out again. I have something go wrong and I feel like crap-ola. All the doctor’s office can say is give it time, they will come in. I truly do not like being in this position. One thing has changed since I wrote this, I have been reminded that I am not supposed to worry about things. I need to put it in God’s hands, he is in control. So much has gone on since 2009, I had kinda forgotten that huge fact. I am actually beginning to feel more at ease about my illness. I do not like getting worse, but I have to remember, I’m just getting closer to him. Honestly, being able to give a little of this worry up is wonderful! I’m loving the peace!*****************************************

I learned to hate that word several years ago. When you are healing after anything to do with the brain, everyone’s favorite thing to say is ” Time, just give it time.”. I do not know about anyone else, but both Barry and I are a tad impatient. Time is a word impatient people can’t stand.

I have to admit that I enjoyed paying Barry back with a few time comments. You have to understand my husband’s quirky sense of humor. I know he thoroughly enjoyed telling me “Give it time.”. He smiled and giggled a little too much after saying it. I turned it around and now use it on him just a little. I tried to hide my snickering.

OK, well down to the news I need to share. My visit to neuro-oncologist was quite informative. He gave us more information than we have ever received from other doctors. He confirmed that I do have Cowden Syndrome. With my medical history, he doesn’t feel the blood test is necessary. He is scheduling an MRI of the brain and a full body PET Scan. He says he hopes they are both negative, but to be ready for the possibility. Said it could be as simple as the thyroid cancer not being totally removed or something else manifesting in the neurological symptoms that have been popping up. Here we go again with that word, TIME! Barry and I are praying and giving it to God. If it’s meant to be……….

I have always been a very compassionate person, to the point of being a sucker. Barry’s stroke strengthened my faith and spirituality. When he was healthy enough, we found a church to call home. We are enjoying getting to know the church community and trying to find which ministry we would like to be part of.

My health would be my precipitating event. Since 2000, I have had 3 spinal epidurals; been through a year with a masseuse; a year with a pain management doctor; been through thyroid cancer three times; my tonsils grew back and removed a second time; had brain surgery for a benign cerebellar tumor; been diagnosed with a rare genetic disease that causes tumors to form through my body; lost my gall bladder. had a ruptured cyst in my left breast and am now facing breast cancer. Surgery scheduled for Tuesday.

I have definitely felt the need to get closer to God and learn more about my religion. I study the bible regularly. I have learned more about the Bible in the last year than I ever did attending church as a child. Barry and I read together every evening. We are trying to get through the bible before summertime.

My re-found spirituality has helped me to notice and appreciate the world around me again. My relationships with my family have improved. I love my husband more everyday! I thank the good Lord daily for bringing him into my life.

Barry and I are now taking care of my mother. She wasn’t in a healthy home-life with her husband. When her health started to decline, she moved in with us. It was a bit of a struggle to start, but we are getting used to each other. I have written about the transition we went through when she moved in. It has been healthy for Barry and I to work on the posts together.

In closing, in my opinion writing has changed my life. I look forward to it daily and enjoy planning my post each week.

For this week:  How has writing deepened your spirituality?  Your compassion or insight?  How have faith and spirituality manifested themselves in your life?  Was there a precipitating event?  Write about the prayer that writing becomes, the spiritual journey that writing has helped you discover.

Nervous Nellie……

Here I sit at 5am, wide awake. Unable to turn my head off long enough to get some rest. I started off sleeping, but Maggie‘s allergies started acting update, causing her to wake us up. At least wake me up.

Barry is down for the count. I couldn’t get him to turn over he’s so deep in sleep. He’s wearing himself out to make sure I’m ready for next week. He wants me well rested to handle the stress that will hit on Tuesday.

I’m ready for whatever comes. It is in God’s hands. I’m not worried. Barry and I have made plans, for when they are needed. I’ve called all my family or emailed them. Everyone is being incredibly supportive. Mom is handling things better. She has stopped crying every time she sees me.

I have faith in my doctor and going to the best hospital around. I walked out of that building after brain surgery, I’ll do it again on Tuesday. When I leave, I will be cancer free. That will be the best part of my day!I’m going to make some coffee, almost time to get ready for church.

We are supposed to get up to 2 inches of rain today. The yard will go nuts! Flowers are coming out beautifully, so far. Rain will get things going……..Have a gorgeous day!

Continuation of the week of April 21, 2013, The Healing Power of Forgiveness

A friend pointed out to me, that I may need to forgive myself to truly feel free and get rid of the feeling in my stomach.

If I can say anything about myself, I can truly say I am my own worst critic. Most of us are, but I am extremely hard on myself, always have been.

My third grade teacher wrote “Jill needs to learn that it is OK to be wrong and make mistakes” on the back of one of my report cards.

That was many years ago and you would think I had changed a little. Apparently not! I may have lightened up a little on myself, but not enough.

Working on apologizing to everyone I feel had to deal with my mess, I think I’ll add myself to the list. Surely I can figure out how to forgive and apologize to myself.

For the week of April 21, 2013: The Healing Power of Forgiveness

The Healing Power of Forgiveness

The morning of April 18, 2013, I received a call from my physician specializing in breast health. She called to let me know my biopsy results did show cancer. Some called Invasive Ductal Carcinoma.

She informed my husband we need to schedule an appointment to discuss options and she asked if we had thought of what to do if this matter came up.

Barry and I had not expected this matter to seem so quickly, so our answer was of course, No! Maybe we were a little naïve, but we were trying to work on the “positive thinking” option I guess we need to work on that a bit more.

I have always been vigilant with scheduling my physical and mammograms.In 2009, the brain tumor appeared and threw us for a loop.

After the brain tumor the weird symptoms appeared and I was diagnosed with; Cowden’s Syndrome, Lhermitte Duclos Disease, Thyroid Cancer, my gallbladder was removed, my tonsils were removed a second time, my mammograms started showing suspicious areas that needed to be rechecked and then biopsied.

During all of this hoopla, I felt the incredible urge to seek forgiveness from my God, my family and friends. When the possibility of death smacks you in the face, it makes you take a step back and look at our life. I felt silly apologizing to some of my friends, but the Lord and my is a different story.

My husband Barry was the toughest, but I could tell he was confused. But we talked it out. One of my desires, was to find and get involved in a good church. I wanted Barry and I to go together. I missed attending church.

We have since found as wonderful church and have become active members. Mom is going with us. It is a pleasure to see her enjoying herself and flourishing in the church community. She is about to be baptized.

I continue to ask God for forgiveness daily and to grant me the Grace, Strength and Mercy to help me settle the uneasiness that remains in the pit of my stomach today; I believe I know what I need to do to settle my stomach, but I am scared.

In the next month, I think I’d like to apologize to my ex-husband. He feels like my missing link. The problem I need to solve.

My family is extremely supportive and I love them each and everyone. They seem to have accepted my apology without fail. I hope this brings the closeness we once had back into our lives.

I didn’t leave my first marriage as I should have. I left my sister, Sandy and her family in town to deal with my mess. I was a mess at that time and truly did not know how to handle the situation. To put it plain and simple, I was young, stupid and scared. I got a new career and threw myself into work.

Seeking forgiveness from everyone involved, has started to ease my mind. I still need to follow through with talking to my ex-husband. We will see if it helps.

DAIlY PROMPT FROM

http://writingthroughcancer.com

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