Tomorrow

The doctor has decided that my left knee needs replacing. At the moment my left leg is swollen from the ankle up to my hip. I look like I have a cankle. Since my brain tumor surgery, I haven’t been light on my feet.

The falls I have taken, since brain surgery really screwed up my balance, ha done a job on my left knee. I’ve been incredibly lucky and only ended up in the emergency room one time. I had forgotten how bad getting stitches hurts! But all the falling has taken care of any useful cartilage in my knee.

With the breast cancer, I’m still waiting to hear which treatments I will be getting. So, I am sure knee surgery is going to have to wait until after my treatments. I’m making a list of questions, for both doctors, I need to add that to both list.

This is crazy, I’m putting my health issues in a que to be handled in order of importance. Cowden Syndrome strikes again!

Wednesday afternoon, I am having a cyst removed from my right wrist. I’ve had wear a cast a few times when the cyst was enlarged. Apparently to get it to stop, it needs removing. My right hand is my only good hand. I need to keep it in shape as long as possible. I’m not looking forward to a cast or brace again, but I’m a tough cookie. I can handle it! Wish me luck!

Personal Prayer Request

I believe in the power of prayer. I have seen too many things in my lifetime that proves there is. On this date, I am asking that everyone pray for my father, Lee Van Hayes. He received some extremely bad news from his doctor today. I think we were all expecting it, even dad, but hearing those words are not easy. WordPress Blogs are full of love and kindness, with a few freaky things added in. I’d love it if I could take my computer to Pop and show him all the well wishes received from my fellow bloggers.

WordPress reaches tons of people. It would be such a wondrous thing to get at least half the people, in our blogosphere, saying a little prayer for one special man. I know he is not special to everyone, but he is to my family and his friends. My dad doesn’t meet strangers, he likes everyone. He is just the biggest sweetheart on earth! My family, as well as Barry and I would greatly appreciate any small wish of good health or just a hope you are feeling better soon.

We are to the point that prayer is the answer. Dad is in God‘s hands and he will take care of him. Thank you in advance for anything you say!

If my comments section is not working yet, please use the email available for my blog: geegeebear3@gmail.com.

Have a bless day!

Barry and Jill

and the family of LeeVan Hayes

English: The logo of the blogging software Wor...

English: The logo of the blogging software WordPress. Deutsch: WordPress Logo 中文: WordPress Logo (Photo credit: Wikipedia)

 

Daily Prompt: In Good Faith: A brother’s wish

Describe a memory or encounter in which you considered your faith, religion, spirituality — or lack of — for the first time.

Photographers, artists, poets: show us FAITH.

During a shift at my first job, I admitted a man to my unit that was in bad shape.  I discovered his admission was at the request of his Hospice,  for pain management. Being a new graduate nurse, you get crazy assignments and tough cases as learning experiences.

I completed the proper paperwork, gave the patient medications his doctor ordered, did what I could to help the family and make them comfortable. I gave the report to my charge nurse and then; started rounds on my other assigned patients.

The supervisor met me in the hallway to tell me of a status change for my new patient. When I returned to his room, I met a representative from his Hospice and he introduced me to the family gathered to say good-bye. My new patient’s diagnosis was End Stage Pancreatic Cancer and his last wishes were to be admitted to Room 434 at the Regional Hospital, where his wife passed away. She died, in 1984, in the same room where he laid dying now.

The Hospice nurse explained his wishes a little better. When his time was close, he requested to be admitted to the hospital for pain management. For about two hours, I played private-duty nurse to his family for whatever need may arise. I tenderly cared for their family member and provided pain management, as ordered, to keep him as comfortable as my capable hands could.

It did not take long for the signs that God was calling him home to show up. His respiration’s were becoming shallow and his heart rate slowing. When the end was upon us, our patient’s brother stepped forward and stated. ” I’d give anything, to see him sit up in bed and take one more breath.”

As in slow motion, my patient slowly, sat up in bed and drew in a long exacerbated breath, fell back on his pillow and was gone. Everyone just looked around the room in amazement. The Good Lord swept in and took him off to be with his wife.

As I watched the family leaving and listened to their stories of this man’s life, I imagined he and his wife walking, hand-in hand, down a beautiful street in heaven.

My faith has always been strong. When it falters just a little, I think back to the 39 years of patients I have cared for and the many unexplained things I have seen. I have no doubt in my mind, there is a God and he is with us always! This story is about my first spiritual encounter. I will never forget the feeling in that room. I left the room full of faith and longing. I get goosebumps, just thinking of that night.

Should we take a vacation or rest and heal?

Having breast cancer is such an issue. To start off, everything is rush, rush, rush to get a diagnosis. They will put you through a mammogram. ultrasound, MRI, and biopsy in one afternoon. Making you think you have some horrible problem that needs to be removed NOW! After all this, they schedule you to see a doctor a few weeks out. They freak you out about the possibility of cancer and then the wait is on.

When you get an actual diagnosis and the rush is back on to see a breast surgeon. You see the doctor and the rush is back on to remove the tumor, at the surgeons convenience. Once that is over, the weight is on again. Then you receive a call and are given date to see oncologist. The Radiation Oncologist at 11am and the Medical oncologist at 3:30pm. All in the same day, but there is no way to get the appointments closer together. After packing for a day at the hospital clinic, we head to the second appointment. They had a no-show and we got in early. It was nice to get in and out of there quickly.

The one thing I didn’t enjoy was listening to the same speech from two different doctors for over an hour each time. One doctor even wanted to know if the other had explained properly a certain lab test that can decide my need for chemotherapy or not and they both asked if the surgeon had gone over anything with me.

Without asking for our response again, We were given  appointments to get ready for radiation treatments, then found out at the next appointment, it would be hurry up and wait for blood-work ordered and a test on the tumor they removed. I feel like I know absolutely nothing about what is going to happen for my treatments. Better yet, I have an idea of the treatment, I just have no clue when the treatments will start. Maybe. by the end of the summer, I’ll have an idea when this will be over.

I have to remember this is in God’s hands and I need not worry. He’ll make sure things are under control. Take one day at a time. In this waiting period, should Barry and I rest and take time to heal or should we take off somewhere?

English: pink ribbon

English: pink ribbon (Photo credit: Wikipedia)

 

Photo display leading to my wonderful news

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Received wonderful news, Margins are clear….now off to Radiation Oncologist to discuss treatment! Thanks for the prayers and support!

Not sure this is an Urban Legend, but I found out it is true….the hard way!

Ever heard that if you stick a snapping turtle to a person, they will not let go until they hear thunder rumble? Well, let me tell you about a fishing trip when I was 2 years old. My sister Sandy was 4 years old when this occurred.

Pop caught a turtle and let Sandy play with it. For years, Dad had told us all these crazy stories about animals. One of those stories listed above. Mom and dad were not paying attention.Little Miss Sandy decided to try this tale out. When I turned around, quickly, Sandy stuck the turtle to my stomach, right at the top of my ribs.

That turtle latched on, Sandy screamed let it go and ran. I immediately started to bleed and I added to the screaming. Mom put her pole down and came to check on us. A storm was blowing up. At the moment mom reached me, there was a rumble of thunder and that crazy turtle let go and fell to the ground. Mom picked it up and threw it in the water. She yelled at Dad it was time to go. We packed up and headed home. I still have a scar today.

As you can tell, we had a little more freedom as children when we were younger!

 

Another story took place in our backyard. We had a little plastic pool in the backyard to splash around and cool off. Sandy decided she wanted to teach me how to swim. Mom said that was fine. Sandy and I filled the pool up and got in our swimsuits. Sandy’s idea of teaching me to swim was me on my stomach lying on the bottom of the pool with her sitting on my back. I’m just thankful mom checked on us before I drowned. Needless to say we were not allowed in the pool alone anymore. I still thought my big sister was the coolest thing on earth.

Just Write: Raising Mom/ written to post next week, it couldn’t wait! Forgive me please

my momma

my momma

Mom is struggling.
She regrets so much in life
She is worried about her husband, but the home wasn’t safe for either of them to live.
Sleep with a gun on your bedside table, not feeling comfortable in your home or around your husband’s family.
She doesn’t understand why her problem started.
Bipolar Disease and Lewy Body Dementia?
I’m not sick, where did this come from?
The doctors have spoken with her, but her brain can no longer fully understand.
Feels like the old her is slipping away.
Fighting her independence, fear slipping in.
The unknown is scary.
Accepting her daughters and son-in-laws as caregivers and protectors.
Barry and I are helpful and supportive, she doesn’tbknow how to accept assistance or be humble when needed,
This is not the way it should go.
She dreads becoming a burden, even though everyone tells her she isn’t, We also love her dearly.
She feels like nothing is wrong, until the terror sets in at night.
Hallucinations and living out dreams with family long gone.
Should be scary, but she enjoys seeing her visitors.
Mom hates medication, but it is working beautifully. Big improvementd, no more driving.
She’ll adapt, she didn’t need to drive anyway. She used to be a wee-bit scary behind the wheel
Life with mom, our big adventure.

image

http://extraordinary-ordinary.net/2011/09/10/just-
write/

Post Lumpectomy Unexpected Infection

Wednesday morning, I woke up feeling fine. I had a banana and sat down with a cup of hot decaf to walk my voice up. Barry was going to the hospital for blood work and bringing breakfast home with him. I crawled up in my favorite chair and got comfy under a blanket. While waiting for Bear to get home, I started to feel horrible. I got up, went back to bed and crawled under all the covers. 

Bear got home and pulled the thermometer out. Other than feeling like a truck had run me over, I felt good. My temperature was headed over 100° at that time. I was a bit dizzy and nauseated, but just extremely cold. I stayed folded up in the covers and rested. My temperature slowly climbed to 102°.

Barry called the breast surgeon‘s office and spoke with the nurse practitioner. She suggested I be seen by a doctor. My family doctor was closer than the breast center, so we called Dr. R.. She saw me at 3:30pm. After a bit of a work-up, she decided it was the incision under my arm. She sent me on my way with orders to rest, take my antibiotics, drink lots of fluids and see breast surgeon as soon as possible.

My private nurse, Barry, is watching me like a hawk. We saw the breast surgeon today. They agreed with my PCP on the diagnosis. They took a good look at the incision; pulled a loose suture out and the pain under my arm went immediately away. I was instructed to use the arm as much as possible, to avoid further fluid build-up. Of course, I was told not to over-do it. More drinking was encouraged and I’m to get the fever gone before my next surgery on the 28th. They want to get my margins clean and me free of breast cancer. I’m ready to be still for a bit. My running legs are getting tired. My chauffeur is starting to show a little wear. I can’t drive at the moment. My poor Bear catching all the driving duties.

Mom Will Be Home Sunday-sang to tune of “Nothing could be finer”

MOM WILL BE HOME SUNDAY

Nothing could be finer,

Than to have Mom in North Carolina,

In the morn…..rning…………..

There is nothing greater,

cuz she’ll be gone till three days later in the night,

the next day will be alright…………

cuz she’ll sleep till two days later with her cat…..

we do not mean to sound displeased,

cuz the house has been ours for three wonderful days and nights….

and we managed to keep the cat and dog aliveeeeeeeee……….

*************************************************

I’m happy she is going out-of-town to have some fun, but I am even more thrilled, to have Barry and the house to myself. Am I being awful? I’m loving the time with alone with Barry, but I developed a little fever and running back and forth to doctor’s offices more than usual. They are trying to figure out where the temperature is coming from. It appears that I have an infection in the surgical incision under my arm and 102° temp is coming from. I feel like I’ve been hit by a truck(a very large truck). On antibiotics and am seeing surgeon at lunch tomorrow.Wish me luck!

Post Lumpectomy: Day 9 pathology report from Dr. S

When you go to a doctor’s visit for a pathology report, life can get a little scary. They tell you they caught it early and it will be easy to handle once out.

I’m not worried about the results, my life is in the hands of Our Glorious Heavenly Father. I’m ready for whatever he has planned for me.

I’m getting a bit frustrated with things going wrong with me. I’m especially frustrated with the constant need doctors have to cut holes in my body. It will not take long for my body to look like a road map of scars. I need to make an appointment with a dermatologist next. I have a few places that need to be checked out.

Cowdens Syndrome is manageable, but you have to stay on top of your screenings. Miss one could mean a major life change or your life. At the moment, my head is spinning and I can not turn it off.

There are so many health issues going on with me at the moment, it is hard to judge what to handle first. The priority at the moment, is the breast cancer. My knee would have to be next and the growth on my tongue is third. Within the breast cancer treatment, I have been getting treatment to the left knee. I have an appointment next week concerning my tongue. We’ll see.

Received the pathology report today from surgery. My lymph nodes are clear, but the cancer had spread in the tissue around the tumor. I have to have another operation to let the doctor remove more tissue.

Unfortunately, the process I’ve just been through is about to repeat and could repeat numerous times until she is happy with the amount of tissue she has removed. I’m not happy with the thought of more surgery, but I do not want this mess growing in my body.

Well supper is ready and I’m off to serve it up. Have a great evening…….